Wake Up Narcolepsy Announces Involvement with the Coalition to Advance Maternal Therapies

Wake Up Narcolepsy, a 501(c)(3) nonprofit organization founded in 2008, is excited to announce its involvement as a member organization of the Coalition to Advance Maternal Therapeutics (CAMT). The coalition was founded in 2014 “with the goal of better understanding the safety and efficacy of prescription drugs, therapeutics, and vaccines used during pregnancy and breastfeeding.” 

WUN finds that the mission of CAMT aligns with their values and believes that this involvement will benefit their community of people with Narcolepsy that are currently pregnant or will be in the future. Specifically, the organization is excited to offer this resource to their Pregnancy & Parenting with Narcolepsy Support Group, which meets online every week on Tuesdays at 8pm ET. 

Wake Up Narcolepsy is an organization dedicated to driving awareness, education and research towards improved treatments and a cure for Narcolepsy, a lifelong disorder of the central nervous system, characterized by the brain’s inability to control sleep-wake cycles. 

According to the CAMT, “…not enough is known about the effect of most drugs on a woman and her pregnancy, or the ways in which pregnancy may alter the uptake, metabolism, and effect of medication. Without reliable data, women who are pregnant or nursing may decide to stop taking necessary medications, increasing risk for both mother and child.” This is something that directly affects the Narcolepsy community, as many of the medications taken by people with the disorder are ones that cannot currently be taken while pregnant or nursing. 

“Looking forward, we are excited to be the mission partner of an organization dedicated to advancing options available for a community we care about deeply,” says Tammy Anderson, Wake Up Narcolepsy’s Patient Advocate & Program Manager. “This is just the beginning of partnerships WUN is participating in to help specific communities that are often underrepresented in the Narcolepsy world.”

Thank you to the Coalition to Advance Maternal Therapeutics for the opportunity to be involved in something great!