Join people across the country who give support to all those living with Narcolepsy and their families.

Wake Up Narcolepsy Community Volunteer Descriptions

WUN Community Leader
• Oversee activities in your region
• Recruit other volunteers beginning with local WUN families
• Organize meetings
• Work with WUN staff on goals and progress


WUN Fundraising Committee Member
• Create a fundraising event in your region
• Build a committee of other WUN families in your region
• Plan logistics of event
• Be day of WUN representative
• Use WUN’s online fundraising platform with staff guidance for the event
WUN will assist with materials, incentives, day of collection package, permits, insurance


WUN Peer to Peer Supporters
• Share their experiences with other people living with Narcolepsy for support and connection
• Be a resource to reach out to PWN and /or family member that needs support
• Be an online support group lead



WUN Community Liaison
• Find opportunities for meet & greet, media opportunities and clinician relationships
• Creates lists for opportunities
• Organizes meet & greets
• Reaches out to local Narcolepsy clinicians to bring WUN information
• Reach out to local media for awareness opportunities


WUN PWN Voice of Patient
• Share your journey as a PWN, parent or caregiver with the community, our pharma partners, clinicians or researchers
• Work with WUN staff to train to be a spokesperson
• Be available to be interviewed by pharma, be a speaker at a WUN event or webinar