Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient Reported Outcomes Scale (PN-PROS)
Share your experience living with narcolepsy! Narcolepsy is a chronic neurologic condition that tends......
Wake Up Narcolepsy is a 501(c)(3) not for profit organization that seeks to raise awareness, bringing direction to the search for a cure while providing a strong community of support. Stay current and connect with WUN.
Narcolepsy by the Numbers
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Narcolepsy affects 1 in every 2,000 Americans and 3 million people worldwide.
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It is estimated that up to 50% of patients with Narcolepsy may be undiagnosed.
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Typical onset of Narcolepsy is between the ages of 10 and 20 years old, but can occur in early childhood.
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On average, patients have 6 physician visits before receiving a Narcolepsy diagnosis.
Latest News
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Read MoreAvadel Pharmaceuticals Completes the REST-ON Phase 3 Pivotal Trial of FT218 for Excessive Daytime Sleepiness and Cataplexy in Patients with Narcolepsy
Avadel Pharmaceuticals plc (Nasdaq: AVDL), a company focused on developing FT218, an investigational, once-nightly formulation of......
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Read MoreFree Upcoming Webinar Hosted by NORD – A Rare Response: Addressing the COVID-19 Pandemic
“As leaders in the rare community, we recognize that community members are worried. Do you......
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Read MoreCanadian Sleep Society – 2020 Montreal Education Meeting
The 2020 CSS Educational Meeting will take place from May 29th till May 31st in Montreal at le Palais......
Finding a cure quicker, together.
Partnering with our community, sleep centers, and experts, we drive funding initiatives towards a deeper understanding of narcolepsy, better treatment options and ultimately a cure.