Liz Guckian is a 24-year-old PWN from New Jersey, who was diagnosed with Narcolepsy Type 1 at age 12. She now works in digital advertising and lives in New York City.
Dr. Luis Ortiz is an Assistant Professor of Pediatrics at Johns Hopkins University and physician in the Sleep Center at Johns Hopkins All Children’s Hospital. He joined the medical staff in 2018. He was diagnosed with narcolepsy at age 21.
Dr. Ortiz earned his medical degree from the University of Rochester. He completed his residency in internal medicine and pediatrics at the Charleston Area Medical Center. He also completed a fellowship in pediatric pulmonology at the Johns Hopkins University School of Medicine in Baltimore, Maryland. He also completed a fellowship in sleep medicine at the Children’s Hospital of Philadelphia and the Hospital of the University of Pennsylvania in Philadelphia.
His clinical interests include narcolepsy, hypersomnia, obstructive sleep apnea, and skeletal dysplasias. His research interests include examining the interaction of sleep disorders on chronic pediatric diseases such bronchopulmonary dysphasia, asthma, and developmental delay. He has worked extensively in creating educational content for people with narcolepsy as well as advocating for patients with rare diseases.
Thank you to our 2023 sponsors
Friendly Reminder: All outdoor program areas are weather permitting, and we will have fun backup indoor options if needed. Remember to wear closed toed shoes to the Horse Barn and Archery.
The Dining Hall and the Gym will remain open. Children under the age of 18 must be accompanied by an adult at all times. 10:00pm-6:30am is quiet time in lodges. The Dining Hall and the Gym will be open 24/7. The doors in the lodges are heavy and loud. Please keep that in mind when opening and closing the doors in your rooms. THANK YOU!!!
(Caregiver Session with Liz in Adventure Lodge)
*Remember to wear closed toed shoes to the Horse Barn and Archery*
|Horseback Riding Schedule: (What you signed up for Friday Night)|
Staff/Volunteer Meeting in the Dining Hall