Center for Courageous Kids
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2023 Information
Read Featured Presenter's Bio
Liz Guckian is a 24-year-old PWN from New Jersey, who was diagnosed with Narcolepsy Type 1 at age 12. She now works in digital advertising and lives in New York City.
Read Featured Presenter's Bio
Dr. Luis Ortiz is an Assistant Professor of Pediatrics at Johns Hopkins University and physician in the Sleep Center at Johns Hopkins All Children’s Hospital. He joined the medical staff in 2018. He was diagnosed with narcolepsy at age 21.
Dr. Ortiz earned his medical degree from the University of Rochester. He completed his residency in internal medicine and pediatrics at the Charleston Area Medical Center. He also completed a fellowship in pediatric pulmonology at the Johns Hopkins University School of Medicine in Baltimore, Maryland. He also completed a fellowship in sleep medicine at the Children’s Hospital of Philadelphia and the Hospital of the University of Pennsylvania in Philadelphia.
His clinical interests include narcolepsy, hypersomnia, obstructive sleep apnea, and skeletal dysplasias. His research interests include examining the interaction of sleep disorders on chronic pediatric diseases such bronchopulmonary dysphasia, asthma, and developmental delay. He has worked extensively in creating educational content for people with narcolepsy as well as advocating for patients with rare diseases.
Thank you to our 2023 sponsors
Fall 2023 Camp Schedule
Friday
- 2:00pm – 3:00pm
- Volunteer Arrival
- 3:00pm – 4:30pm
- Volunteer Orientation in the gym
- 6:00pm
- Family Orientation in the Dining Hall
- 6:30pm
- Dinner in the Dining Hall
- 7:15pm
- Family Photo at fireplace, Horseback riding signups at the podium, & “Superhero Creation” in dining hall with Wake Up Narcolepsy
- 7:45pm-8:45pm
- Swimming, Fun Center, and/or Mini Golf
- 9:00pm
- Staff Meeting in the Dining Hall
Friendly Reminder: All outdoor program areas are weather permitting, and we will have fun backup indoor options if needed. Remember to wear closed toed shoes to the Horse Barn and Archery.
The Dining Hall and the Gym will remain open. Children under the age of 18 must be accompanied by an adult at all times. 10:00pm-6:30am is quiet time in lodges. The Dining Hall and the Gym will be open 24/7. The doors in the lodges are heavy and loud. Please keep that in mind when opening and closing the doors in your rooms. THANK YOU!!!
Saturday
- 7:30am – 8:15am
- Early Risers – Fishing, Archery, Music & Arts & Crafts
(Caregiver Session with Liz in Adventure Lodge)
- 8:30am
- Breakfast in the Dining Hall
- *Group Photo after Breakfast*
*Remember to wear closed toed shoes to the Horse Barn and Archery*
| Horseback Riding Schedule: (What you signed up for Friday Night) | |||
|---|---|---|---|
|
Session 1 |
Session 2 |
Session 3 |
|
- 9:30am – 10:45am
- Cooking, Woodshop, Arts & Crafts, and/or Mini Golf
- 11:00am – 12:15
- Nature, Archery (Wear closed-toed shoes), Bowling in the Fun Center
- 12:30pm
- Lunch in the Dining Hall
- 1:30pm – 3:00pm
- Siesta
- 3:15pm – 4:30 pm
- Bingo in the Dining Hall and/or Music (Cubby’s Closet is open 2:45pm – 4:00pm)
- 4:15pm– 5:45pm
- Kids = Carnival, Parents = Educational Session with Dr. Ortiz in the Adventure Lodge
- 6:00pm
- Dinner followed by CAMP JAM in the Dining Hall
- 7:30pm – 8:45pm
- Swimming in the pool and/or Mini Golf (Oldest Camper Activity in the Dining Hall)
9:00pm
Staff/Volunteer Meeting in the Dining Hall
Sunday
- 8:30am
- Breakfast/Cleanup Announcements/Cubby Signing in the Dining Hall
- 9:15am – 10:15am
- Archery, Critter Club (Barn), Fishing, and/or Woodshop
- 10:30am
- Closing Ceremonies/Cubby Reveal in the Dining Hall
- 12:00pm
- Volunteer Closing & Cleanup
