Part of Wake Up Narcolepsy’s mission is providing supportive resources for people with Narcolepsy and their families. Below is a preview of the supportive resources we offer.

Narcolepsy 101

We often hear from our community about the challenges of explaining narcolepsy to others. Narcolepsy 101 is a series WUN created to easily share. So that hard work of explaining is in our hands and not yours!

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Online Support Groups

WUN offers free, targeted online support groups to individuals with narcolepsy and their families, world-wide. Our programs are designed to bring together individuals who have been affected by the diagnosis of narcolepsy and provide the support and community necessary to thrive.

Young Adults with Narcolepsy group addresses issues people with narcolepsy face between the ages of 18-30. Covering issues such as college and study habits, career options, driving, relationships, diet and sleep hygiene this group is led by an experienced educator who has narcolepsy and is also a college professor.

Parenting & Pregnancy with Narcolepsy group is a drop-in style – support for any parent, soon to be, or thinking about it. The group offers weekly support based on participants needs as they arise while navigating parenting and pregnancy with narcolepsy.

Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges.

The Living with Narcolepsy group is an open drop-in for adults affected by narcolepsy. The group offers weekly support based on participants needs as they arise while navigating life with narcolepsy.

Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges. While the focus is towards PWN, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform.

Wake Up Narcolepsy Education Days

WUN offers one day conferences for PWN, their families, educators, clinicians and researchers. Leading experts will be sharing their latest research on treatment options, impact of narcolepsy, comorbidity and how to live a full life with narcolepsy.

Upcoming Education Day

Wake Up Narcolepsy in collaboration with Hypersomnia Foundation is hosting an Education Day at Sleep Expo 2019. This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. Leading experts will be sharing their latest research on treatment options, the impact of narcolepsy and idiopathic hypersomnia, comorbidity and how to live a full life with narcolepsy and hypersomnia.

This special Education Day is in collaboration with the Hypersomnia Foundation and World Sleep. This will offer a unique opportunity for people with narcolepsy and/or idiopathic hypersomnia to mix and mingle with sleep doctors, clinicians and researchers from World Sleep 2019. It takes place during the first-ever Sleep Expo through World Sleep 2019, a full scientific congress on sleep medicine and research.

Past Education Day

Birthday Fundraiser

Celebrate your birthday by supporting others!

Celebrate your birthday by supporting others!Wake Up Narcolepsy is dedicated to supporting Narcolepsy awareness and research to find a cure.

Why not join in the fun of raising awareness by offering your community, friends and family the opportunity to support you and others through a birthday fundraiser.

We have three supportive services that you can support through your birthday fundraiser.

>> Online Support Groups

>> Camp for CWNs and their families

>> WUN Education Days

Launch your own birthday peer to peer fundraiser by clicking the button below!

Narcolepsy 360 Podcast

Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder.

The Narcolepsy 360 podcasts are a series of interviews that take a panoramic view of narcolepsy from the patient, care-giver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From latest research to life-style tips, our podcasts shed light on the less discussed issues around narcolepsy.

Join Claire Crisp, our Executive Director, as she chats every week with people within our community.

#BeYouWakeUp

For Sleep Week 2019 we launched an awareness campaign about PWNs. We wanted to celebrate all that encompasses PWNs.

Brene Brown, a research professor and author says, “Be You. Be Seen. Belong.” Inspired by her words we asked PWNs to tell us what it means to #beyou.

Below are the submissions we received for #BeYouWakeUp.

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Voice of Narcolepsy

Excerpts of life stories told by people with narcolepsy and their loved ones.

Wake Up Narcolepsy News

Archived blog posts from our Latest News. Read about the past events and milestones WUN has experienced the last 10 years.

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