Boston Children’s Hospital Pediatric Hypersomnolence Survey

Narcolepsy and idiopathic hypersomnia usually begin in early adolescence, but diagnostic delays ranging 5-10 years are common, impacting disease burden. To improve early identification of these treatable conditions, Dr. Kiran Maski, Boston Children’s, developed and validated the Pediatric Hypersomnolence Survey (PHS). This is a screening tool that can be used in clinical offices and the community to assess sleepy kids and teens. We hope this survey can help triage kids/teens with narcolepsy/idiopathic hypersomnia more directly to sleep medicine providers for timely diagnosis.

Click here to access the survey.

This work was just accepted by the journal Neurology https://pubmed.ncbi.nlm.nih.gov/35314496/.

The development of the PHS was funded by Covery Health Care and Wake Up Narcolepsy.