Boston Children’s Hospital Pediatric Hypersomnolence Survey

Narcolepsy and idiopathic hypersomnia usually begin in early adolescence, but diagnostic delays ranging 5-10 years are common, impacting disease burden. To improve early identification of these treatable conditions, Dr. Kiran Maski, Boston Children’s, developed and validated the Pediatric Hypersomnolence Survey (PHS). This is a screening tool that can be used in clinical offices and the community to assess sleepy kids and teens. We hope this survey can help triage kids/teens with narcolepsy/idiopathic hypersomnia more directly to sleep medicine providers for timely diagnosis.

Click here to access the survey.

This work was just accepted by the journal Neurology

The development of the PHS was funded by Covery Health Care and Wake Up Narcolepsy.