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    • General Donations
    • Advancing Research
    • Awareness Apparel
    • Other Ways To Give
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      • Shadows to Light Gala 2024
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    • 990 Forms

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    • Brown Bag Narcolepsy Webinar Series
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What Does That Mean? Terms to know when GET INVOLVED talking about Narcolepsy
Excessive Daytime Sleepiness - EDS isn't just falling asleep during the day, it can present in other forms and create obstacles for daily life such as: poor memory, brain fog, automatic behaviors, difficulty following a conversation
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Cataplexy is a symptom of narcolepsy type 1
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Orexin/Hypocretin - brain chemicals that help sustain alertness and prevent REM sleep from occurring at the wrong times
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Sleep Disruption - The breaking up of sleep by frequent awakenings, also known as fragmented sleep
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Sleep Attack - People with Narcolepsy may feel a strong urge to sleep, often followed by a period of sleep. These are considered uncontrollable.
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What Does that Mean? Terms to know when talking about Narcolepsy by Wake Up Narcolepsy. Automatic Behaviors: When an individual continues engaging in whatever habitual activities they were doing, but in a semiautomatic way without conscious awareness (ex. eating talking, driving a familiar route). These can be unsettling experiences for individuals and may put them in harm's way. Individuals experience these in different ways and to different extents, but often have no memory of the behaviors after. Automatic behaviors can lead to psycho-social impairments and affect relationships, academic performance, professional success and leisure activities.
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Microsleeps - Period of sleep that lasts 15 seconds or less during which people lose conscious control of what they are doing
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What Does That Mean? terms to know when talking about narcolepsy. Brain Fog - Individuals with Narcolepsy may experience their head, mind and body feeling foggy. This can lead to: difficulty thinking, concentrating and/or forming thoughts, difficulty focusing on, following and/or carrying on conversations, being more forgetful, forgetting things you normally wouldn't.
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What Does That Mean? Terms to know when talking about Narcolepsy - Wake Up Narcolepsy. Multiple Sleep Latency Test (MSLT) - Conducted after the overnight portion of a sleep study (PSG), the MSLT is a series of naps to assess the quality of sleep at night and the degree of sleepiness during the day. 4-5 naps scheduled at 2 hour intervals beginning a couple hours after you wake up. Falling asleep quickly and entering REM sleep during naps is an indication of Narcolepsy. Documents how readily a person can fall asleep, REM patterns, eye movements, heart rate, chin movements and certain brain activities.
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What Does That Mean? Terms to know when talking about Narcolepsy - Wake Up Narcolepsy - Types of Narcolepsy - There are two types of Narcolepsy that share some symptoms, but are also different in many ways. Narcolepsy Type One (NT1) Also known as: Narcolepsy with Cataplexy - Caused by low levels of orexin/hypocretin in the brain, Narcolepsy Type Two (NT2) Also known as: Narcolepsy without Cataplexy - Normal orexin/hypocretin levels in the brain
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What Does That Mean? - Terms to know when talking about Narcolepsy - Sleep Inertia - The transition period from sleeping to feeling fully alert that can take up to 30 minutes - Info from livestrong.com - Wake Up Narcolepsy series
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