Last month WUN sponsored a weekend camp for children with narcolepsy and their families. Set in the beautiful Kentucky countryside, The Center For Courageous Kids accommodated 33 families from our community, many of whom had never before met another child with narcolepsy. For parents and...
Wake Up Narcolepsy is excited to work with you and offer the opportunity for individuals, families and teams to raise narcolepsy awareness and funds. One of the many fantastic things about the new peer-to-peer platform is that we all, as advocates, have the opportunity to...
A year ago, WUN carried out a survey within our community asking people and families affected by narcolepsy about their most pressing needs. An overwhelming number of patients and care-givers responded with the need for support and connection because narcolepsy can be bewildering and isolating....
The Los Angles Narcolepsy Day is a one day conference for PWN, their families, educators, clinicians and researchers. Leading experts will be sharing their latest research on treatment options, impact of narcolepsy, comorbidity and how to live a full life with narcolepsy. Presentations from Dr. Emmanuel...
This year, TEAM WUN included runners from all over the US who traveled to Boston after months of intense training and individual fundraising efforts. Fernando Leos, Mare Giacalone, Annie Zhang, Amanda Burs, Tanner Smith and Michael Shiavo together have raised $56,000 for Narcolepsy research which...
Registration for our New York Patient Education Day in Tarrytown, NY on September 22, 2018 is now limited. To book your place please email Tammy Smith at tsmith@wakeupnarcolepsy.org. Join us and LPGA Professional and WUN Board Member and PWN as we discuss "Living and Succeeding with...
Experts will be sharing their experiences and first-hand knowledge with PWN on September 22nd 2018 in Tarrytown just outside NYC. Check out the line up below and register today for free! Registration and Coffee 8:45-9:30 AM Welcome and Introduction Tammy Smith, Board Member, Wake Up Narcolepsy 9:30-9:40 AM “Overview of Narcolepsy and...
Join us for our WUN patient education day in the NY Metro area this September. With a full line up of speakers sharing their expertise on narcolepsy, this free event is open to individuals with narcolepsy and family members. Pre-registration is recommended as spaces are...