Join WUN for a monthly Brown Bag Webinar Series beginning in June. Two Brown Bag Webinars will be offered in June on the 2nd and the 9th and then monthly thereafter. Join us for these informative sessions and listen to experts sharing information on various topics of narcolepsy. Please Note: Pre-registration is required.
Join WUN for this interesting and dynamic presentation by Dr. Anne Marie Morse. Dr. Morse is a passionate advocate for people living with narcolepsy and will present about individual empowerment and activation in the journey with narcolepsy, focusing on how to speak with your provider.
There is no charge.
Join us for an interesting topic – understanding comorbidities with narcolepsy. Learn about the most frequent medical conditions that accompany narcolepsy. Dr. Chad Rouff provides all of the information to help make you aware of other medical conditions that people with narcolepsy may experience.
The narcolepsy space has several ongoing clinical trials and more to come in the near future. There is a need for the narcolepsy community to understand what is involved in participating in clinical trials. Watch and learn from the experts in this field: Russell Rosenberg, PhD, chief science officer and CEO of NeuroTrials Research, Elisha Stauffer, clinical research coordinator at Ohio Sleep Medicine Institute, and Mike, PWN who has undergone two clinical trials.
Our September 8 webinar will focus on the topic “Current and New Narcolepsy Medications” with Dr. Luis Ortiz, a physician in the Sleep Center at Johns Hopkins All Children’s Hospital. Join WUN at an interactive session with Dr. Luis Ortiz as he presents on current and new narcolepsy medications. Take this opportunity to have all of your questions about narcolepsy medications answered. Dr. Ortiz will open to questions throughout this session.
Our August 11 webinar will focus on the topic “Accommodations, School & Work for people with narcolepsy” with our presenter, Amy Dougrey. Amy is a Parent & Family Educator in the Neurology Department at Boston Children’s Hospital. With a master’s degree from Simmons College in Special Education: Moderate Disabilities PreK-8, and years working in public schools as a Special Educator/Case Manager, Amy helps families navigate the education system; consulting on a case-by-case basis and working with patients who have an array of disabilities. In addition to her work in several clinics within the Neurology Department, Amy assists in the BACPAC Program (Bullying and Cyberbullying Prevention and Advocacy Collaborative) with Neurologist Dr. Peter Raffalli as an Educational Consultant.
Our July 14 webinar will focus on the topic “What Are the WUN Virtual Support Groups?” Join WUN to learn about this amazing free resource. Our panelists are Matthew Horsnell, Narcolepsy Advocate, WUN Support Group Leader, Tara O’Connor, WUN Teen Support Group Leader, College Student, PWN, Sheila Coutts, WUN Canadian Support Group Leader and Sara Wolf, Pregnancy and Parenting Group Leader.
Our June 9 webinar will focus on the topic “Behavioral Treatments & Mental Health Strategies for People Living with Narcolepsy.” Our panelists are Jason Ong, PhD and Shelby Harris, PsyD, DBSM.
Join WUN and the community and listen to leading experts, Dr. Ong and Dr. Harris, as they assist people with narcolepsy in navigating the mental health and behavioral challenges while managing their medical disorder. There will be a Q&A section at the end of the session.
Our June 2 webinar will focus on the topic “Narcolepsy Journey: Tips & Tricks to Living with Narcolepsy.” Our panelists are Nicole Jeray, LPGA Tour Member, PWN, WUN Board Member and Heidi Stock, Creative Marketing Professional, PWN.