Career Opportunities Do you share our passion for advocating JOIN US on behalf of those with narcolepsy?

Join Our Team

Wake Up Narcolepsy is a mission-driven nonprofit dedicated to increasing narcolepsy awareness, education and research toward improved treatments and cures. The organization seeks individuals for the below position(s) to help us fulfill our mission of serving those diagnosed with narcolepsy and those working tirelessly to better understand this neurological sleep disorder. We invite you to apply for the below position(s).


Director of Philanthropy

The Opportunity
The Director of Philanthropy serves as the principal fundraising officer and grants manager for Wake Up Narcolepsy (WUN). He or she is responsible for the oversight, planning and implementation of a comprehensive fundraising program that secures the significant financial resources from individuals, foundations, corporations and others to support WUN’s Strategic Plan. S/he manages all major gifts functions, which include principal gifts, planned giving, donor prospecting and research, and special one- or multi-year fundraising campaigns. S/he works with other staff and board members to establish fundraising goals and is accountable for these goals. S/he motivates and coordinates the efforts of a small team and volunteers – including the WUN Board of Directors – in the identification, cultivation, solicitation and stewardship of donors.

The Director of Philanthropy also manages the relationships with WUN Board Members, donors, vendors, corporate funders and cultivates new prospects. H/she also manages communications and marketing and supervises an effective volunteer program. H/She also manages a personal portfolio of 30 to 40 prospects and guides and supports the WUN ED in her fundraising work. S/he focuses on long-range strategic plan priorities, seeking to raise multi-year commitments when possible and communicates a broad vision to others. The Director of Philanthropy understands and complies with all gift-related policies and procedures and ensures ethical compliance, as defined by the Association for Fundraising Professionals. The Director of Philanthropy is supervised by the Executive Director.

Organization Background
Wake Up Narcolepsy Inc. (WUN) is a 501(c)(3) not for profit organization that aims to accelerate narcolepsy research, increase awareness, and provide educational and supportive services for people with narcolepsy and their caregivers. Based in Massachusetts, WUN was established in 2008 by three individuals closely related to narcolepsy to bring greater awareness to narcolepsy, a rare and misunderstood, often misdiagnosed, serious medical disorder, and ultimately find a cure.

Key Responsibilities

Fundraising and Event Coordination:

  • Organizes and implements fundraising opportunities and events for organization.
  • Implement, track, and follow up on annual, sponsorships, planned giving, other giving campaigns, and other department initiatives.
  • Makes calls and schedules visits with potential and current donors to nurture their interest in WUN.
  • Coordinate the timely dispatch of acknowledgement letters for financial and in-kind donations. Oversees gift acceptance.
  • Coordinates monthly reporting and financial recording with the finance department for board reports and audits.
  • Research and write grants; provide timely reporting and ensure compliance as required with grant awards.
  • Coordinate database use and management for donor records and acknowledgements.
  • Keep master calendar for development work and manage adherence to its tasks and timelines.

Communication and Marketing:

  • Identify and apply innovative technologies that will assist WUN’s development and communication efforts.
  • Manage WUN website messaging, its content, and interactive use.
  • Create, maintain, and apply best practices and policies for online and print communications.
  • Implement social networking and marketing strategies to increase visibility of WUN.
  • Keep master calendar for communications/marketing and manage adherence to its tasks and timelines.

Volunteerism:

  • Encourage donor donations of volunteer time, talent, and funds.
  • Supervise the standardization, improvement, and maintenance of all aspects of the WUN volunteer program, including volunteer recruitment, cultivation, orientation, scheduling, retention, training, recognition, and evaluation.

Board of Directors Support:

  • Actively recruit members for the WUN Board of Directors.
  • Prepare reports, statistics, and other documents, and provide general support as needed for the Boards of Directors.
  • Help with board member events/materials/communication.
  • Maintain current list of board members (names, positions, addresses, phone, email).
  • Keep copies of all board meeting minutes and documents in appropriate file/binders.
  • Ensure confidentiality of all privileged and proprietary WUN information.
  • Serve as staff liaison with consultants for public relations and communications tasks.
  • Other duties as assigned.

Education/Experience:

  • Bachelor’s degree in marketing, communications or the liberal arts.
  • At least three (3) years fundraising experience.
  • Management experience, including the ability to motivate, lead, set objectives and manage the performance of a board of directors or volunteers. Ability to foster an environment of creativity and professional growth.
  • Expert knowledge of current and evolving trends in major-gifts giving and solicitation and fundraising campaigns.
  • Proven success in asking for and closing major gifts.
  • Building and maintaining long-term relationships with major individual donors, foundations and corporations.
  • Proven success in writing and securing grants.
  • Working and effective understanding of the basics of charitable gift planning.
  • Knowledge of more advanced gift planning concepts a plus.

Physical Demands:
This job requires the employee to stand, stoop, bend, climb stairs, and lift up to 20lbs. The position requires fine motor skill of typing, writing, filing and visual acuity. This position requires the ability to speak clearly and understandably.

Work Environment:
This is a remote position. 10-20% of time may be allocated for local travel.

Salary commensurate with experience.
Send cover letter with salary requirements to info@wakeupnarcolepsy.org


Operations Administrator

The Opportunity
The Operations Administrator serves at the primary role to support the daily operations of Wake Up Narcolepsy. The operations administrator’s responsibilities may include responding to customer inquiries, keeping track of inventory, maintaining donor records, maintaining filing system and providing administrative support as needed.

To be successful as an operations administrator you should be able to oversee and ensure smooth and efficient daily operations. This candidate should be adaptable and have the ability to quickly learn various software. A top-notch operations administrator should be highly organized and thrive under pressure.

Organization Background
Wake Up Narcolepsy Inc. (WUN) is a 501(c)(3) not for profit organization that aims to accelerate narcolepsy research, increase awareness, and provide educational and supportive services for people with narcolepsy and their caregivers. Based in Massachusetts, WUN was established in 2008 by three individuals closely related to narcolepsy to bring greater awareness to narcolepsy, a rare and misunderstood, often misdiagnosed, serious medical disorder, and ultimately find a cure.

Responsibilities

  • Prepare communications, such as memos, emails, invoices, reports and other correspondence. Respond to customer service inquiries.
  • Managing and updating company databases.
  • Keeping track of inventory and ordering supplies.
  • Maintaining client records on donor database.
  • Drafting and mailing customer correspondence and newsletters.
  • Organizing events, scheduling meetings, and making travel arrangements.
  • Providing administrative support to the Board of Directors and other staff as needed.
  • Write and edit documents from letters to reports and instructional documents.
  • Create and maintain filing systems, both electronic and physical.
  • Performing other duties as assigned

Requirements:

  • Bachelor’s degree preferred.
  • 2+ years of experience as an operations administrator or in a similar position.
  • Strong organizational and administrative skills.
  • Excellent communication skills, both written and verbal.
  • Proficiency in Microsoft Office and data management software.
  • Detail-oriented with strong analytical and problem-solving skills.
  • Ability to multitask.

The Operations Administrator role is a part-time, in-person position. The office is located in Worcester, MA. Please email cover letter, with salary requirements and resume to info@wakeupnarcolepsy.org

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