may, 2023
03may7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
03may10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
04may6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
05may4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST Event Type :Support
Topic: Living with Narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with Narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
06may1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
10may7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
10may10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
Join NORD representatives Jill Pollander, RN, MSN Vice President of Patient Services, and Alicia Lawrence, LMSW, Information and Resource Services Manager, as they discuss issues that affect access to care for
Join NORD representatives Jill Pollander, RN, MSN Vice President of Patient Services, and Alicia Lawrence, LMSW, Information and Resource Services Manager, as they discuss issues that affect access to care for people with rare diseases and the ins and outs of patient assistance programs. There will be time for Q&A so bring your questions.
Please Note: Pre-registration is required.
(Thursday) 2:00 pm - 4:00 pm
11may6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
12may4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST Event Type :Support
Topic: Living with Narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with Narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
13may1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
17may7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
17may10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
18may6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
19may4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST Event Type :Support
Topic: Living with Narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with Narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
20may1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
Topic: Week 1: Narcolepsy Before the Baby Focus: Prenatal consultations, Birth control and narcolepsy meds, Preconception and medication More Info
Topic: Week 1: Narcolepsy Before the Baby
Focus: Prenatal consultations, Birth control and narcolepsy meds, Preconception and medication
(Tuesday) 8:00 pm
24may7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
24may10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
25may6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
26may4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST Event Type :Support
Topic: Living with Narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with Narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
27may1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
Topic: Week 3: Narcolepsy and Pregnancy Focus: Narcolepsy and sexual intimacy, Family planning with Narcolepsy More Info
(Tuesday) 8:00 pm
31may7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
31may10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm