Yesterday our 2019 WUN Team put all their hours of hard work and training on the line at the Boston Marathon. After months of braving the elements, training and raising funds for narcolepsy research they celebrated by RUNNING. Jennifer Yeatts, Tara Stuart, Elizabeth Riley, Kelsey Biddle...
Axsome is developing a new medication to treat EDS and Cataplexy called AXS-12. if you would like to participate in the clinical trial process click the link below to see if you qualify. Here is their announcement. Axsome Therapeutics is pleased to announce a new clinical...
Wake Up Narcolepsy would like to welcome Kelsey Biddle to our Board of Directors. Kelsey graduated from Dartmouth College in 2017 with a bachelor's degree in Neuroscience. After college, she began working as a clinical research coordinator in the Department of Psychiatry at Brigham & Women's...
Registration is OPEN for our next WUN Narcolepsy Education Day. The WUN Rochester Narcolepsy Education Day will be at Mayo Clinic in Rochester, MN on May 18, 2019 from 8:00 am - 4:00 pm. Narcolepsy Education Day is a one day conference for PWN, their families, educators, clinicians...
For Sleep Week 2019 we will be raising awareness about narcolepsy, but also we want to celebrate YOU! Brene Brown, a research professor and author says, "Be You. Be Seen. Belong." Inspired by her words we would like you to tell us what it means to...
Wake Up Narcolepsy is delighted to announce the award of an additional Boston Marathon bib. We are grateful that Elizabeth Riley has joined our 2019 Boston Marathon Wunner Team! Elizabeth is an avid runner, completing two marathons already and running eight half marathons last year. In 2017,...
Join us for the Kansas City Narcolepsy Education Day! Organized by David Ingram, MD of Children’s Mercy Hospital Date: June 1, 2019 Time: 9am to 4pm Location: Don Chisholm Center 610 E 22nd St, Kansas City, MO, 64108 This is a one-day educational conference intended for individuals with narcolepsy, their family...
WUN is collaborating with Hypersomnia Foundation and Dr. Thanh Dang-Vu to investigate brain regions underlying narcolepsy (with or without cataplexy) and idiopathic hypersomnia. Who can participate: We are looking for patients 18 years or more who have been diagnosed with Narcolepsy (with or without cataplexy) or Idiopathic Hypersomnia. What are the...
Join Wake Up Narcolepsy at camp next October 11-13, 2019. Located at the wonderful Center for Courageous Kids in Scottsville, KY, this weekend camp will be filled with fun activities for families and children with narcolepsy. If your family would to attend, please apply on Center...
You asked. We heard. The Living with Narcolepsy group is an open drop-in for adults affected by narcolepsy. The group offers weekly support based on participants needs as they arise while navigating life with narcolepsy. Led by people directly affected by the condition, this is an...