For Sleep Week 2019 we will be raising awareness about narcolepsy, but also we want to celebrate YOU! Brene Brown, a research professor and author says, "Be You. Be Seen. Belong." Inspired by her words we would like you to tell us what it means to...
Wake Up Narcolepsy is delighted to announce the award of an additional Boston Marathon bib. We are grateful that Elizabeth Riley has joined our 2019 Boston Marathon Wunner Team! Elizabeth is an avid runner, completing two marathons already and running eight half marathons last year. In 2017,...
Join us for the Kansas City Narcolepsy Education Day! Organized by David Ingram, MD of Children’s Mercy Hospital Date: June 1, 2019 Time: 9am to 4pm Location: Don Chisholm Center 610 E 22nd St, Kansas City, MO, 64108 This is a one-day educational conference intended for individuals with narcolepsy, their family...
WUN is collaborating with Hypersomnia Foundation and Dr. Thanh Dang-Vu to investigate brain regions underlying narcolepsy (with or without cataplexy) and idiopathic hypersomnia. Who can participate: We are looking for patients 18 years or more who have been diagnosed with Narcolepsy (with or without cataplexy) or Idiopathic Hypersomnia. What are the...
Join Wake Up Narcolepsy at camp next October 11-13, 2019. Located at the wonderful Center for Courageous Kids in Scottsville, KY, this weekend camp will be filled with fun activities for families and children with narcolepsy. If your family would to attend, please apply on Center...
You asked. We heard. The Living with Narcolepsy group is an open drop-in for adults affected by narcolepsy. The group offers weekly support based on participants needs as they arise while navigating life with narcolepsy. Led by people directly affected by the condition, this is an...
The LA Narcolepsy Education Day is TOMORROW! Although we wish all of you could join us in person, we understand that that isn't possible. GREAT NEWS...
The Sleep Forum Podcast recently released an episode with our very own Executive Director, Claire Crisp, as a guest. Claire shares a bit of her family's narcolepsy story and how she came to work for WUN. She also details about our upcoming LA Narcolepsy Education...
Jennifer is currently on our 2019 Boston Marathon Wunner Team. She is running to raise awareness about narcolepsy in honor of her son Owen, whose symptoms started when he was 10 years old. Recently she was featured in her local newspaper, Clear Creek Courant. Click here to...
Wake Up Narcolepsy is so grateful for the generous donation from The Berns Team. This week, our Executive Director, Claire Crisp, was awarded $2500 a result of their 3rd Annual Charity Giveaway in Los Angeles. Funds will be used to further patient services including our new online support groups...