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Dec 16 2021
 International Narcolepsy Webinar – January 2022

Posted at Dec 16 2021
h in News by


Wake Up Narcolepsy invites you to attend their FREE International Narcolepsy Webinar on Thursday, January 20 and Friday, January 21 to hear the latest advancements from researchers, advocates and individuals with narcolepsy from across the globe. Wake Up Narcolepsy would like to thank the sponsors of this event, Avadel Pharmaceuticals, Harmony Biosciences, Jazz Pharmaceuticals, NLS Pharmaceutics, Orexia Therapeutics and Takeda Pharmaceuticals.

Click here to register. (There is no charge.) Please see below for additional details or click here to download a PDF flyer.

January 20, 2022 Schedule

10:45 am ET Introduction
Monica Gow – Founder & Executive Director, Wake Up Narcolepsy
11:00 am ET Overview of Narcolepsy UK Charter
Matt O’Neill, Chair of Trustees at Narcolepsy UK
11:45 am ET Understanding Sleepiness and Cataplexy in Narcolepsy
Dr. John Peever, Professor and Associate Chair Graduate Studies
Department of Cell & Systems Biology University of Toronto
12:30 pm ET Break
12:45 pm ET Current and Emerging Therapy and the Potential to Address the Orexin Deficit (sponsored by NLS Pharmaceutics)
Dr. Helene Emsellem, Director of The Center for Sleep & Wake Disorders in Chevy Chase and Clinical Professor of Neurology at George Washington University
1:30 pm ET Wake Up Narcolepsy Support Groups Leaders Provide an Overview of this Program
Tatiana Corbitt, Sara Wolf, Emily Barker
2:15 pm ET An Overview of Narcolepsy Medications
Dr. Suzanne Stevens, Clinical Assistant Professor of Neurology Director Sleep Medicine
3:00 pm ET The Drug Development Process
Dr. Deborah Hartman, Chief Scientific Officer at Orexia Therapeutics

January 21, 2022 Schedule

10:45 am ET Introduction
Monica Gow, WUN Founder & Executive Director
11:00 am ET Narcolepsy Treatments in the European Union and Incorporating the Patient Voice
Dr. Ulf Kallweit, Dept of Clinical Sleep and Neuroimmunology at the University of Witten/Herdecke (Germany)
11:45 am ET Living with Narcolepsy
Massimo Zenti, President, Italian Association of Narcolepsy and European Alliance for Narcolepsy
12:15 pm ET Break
12:30 pm ET Behavioral Treatments for Narcolepsy
Dr. Ariel Neikrug, Assistant Clinical Professor, Psychiatry and Human Behavior, University of California, Irvine
1:15 pm ET Presentation by Jazz Medical Affairs (sponsored by Jazz Pharmaceuticals)
Dr. Jessica Sacks, Senior Medical Science Liaison within the Sleep Division at Jazz Pharmaceuticals and Marisa Whalen, PharmD, RPh is Associate Director of Medical Affairs, Sleep, at Jazz Pharmaceuticals
1:45 pm ET Managing the Disruption of Narcolepsy (sponsored by Avadel)
Dr. Anne Marie Morse, Director, Division of Child Neurology and the Division of Pediatric Sleep Medicine, Co-Director, Clinical Pediatric Sleep Medicine Program at Geisinger Medical Center and Diana A., PWN and Patient Advocate
2:15 pm ET Closing
Monica Gow, Founder & Executive Director, Wake Up Narcolepsy

 

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