Nov 10 2025
Narcolepsy Patient Assessment Set (NaPAS) Delphi Study
h in Research Study
Study Title: „Narcolepsy Patient Assessment Set (NaPAS): Development of a standardized outcome set for patients with narcolepsy for the purpose of implementation in routine care”
Principal Investigator: Dr. Gregor Liegl
“You are invited to participate in a study aimed at developing a core outcome set for narcolepsy. Before you decide for or against participation, we would like to inform you about the study’s objectives and procedures. The study was initiated by the H2O Pan European Observatory (PEO, a network that ensures the standardization of patient-reported health parameters and their accessibility for research. The PEO has commissioned the Center for Patient-Centered Outcomes Research (CPCOR) at Charité – University Hospital Berlin to conduct the study.”