Survey: Impact of of Narcolepsy on Social Functioning in Young Adults


Narcolepsy researchers are conducting a survey study of young adults with narcolepsy to assess the impact of narcolepsy on social functioning including friendships and romantic relationships. The study team consists of narcolepsy researchers at Beth Israel Deaconess Medical Center, including Dr. Eric Zhou and Dr. Thomas Scammell. They hope to gain a better understanding of the social lives of young adults with narcolepsy.

This study is open to young adults (age 18-39) with narcolepsy who live in the United States. Your participation is completely anonymous and optional. WUN will not have access to your data, and you can end your participation at any time. The survey should take no more than 15-20 minutes to complete.

To thank you for your time, the researchers will make a $20 donation to your choice of the following patient support and advocacy organizations after you complete the survey:

– Wake Up Narcolepsy

– Hypersomnia Foundation

– Project Sleep


Link to the survey: https://redcap.bidmc.harvard.edu/redcap/surveys/?s=MYNMAHXE9Y


Thank you for your time and consideration.


If you have any questions before or at any time during the study, please feel free to contact Dr. Ryan Davidson (Ryan.Davidson@childrens.harvard.edu) or Dr. Eric Zhou (ERIC_ZHOU@dfci.harvard.edu).