Nexus Narcolepsy Registry Results – Wave 1

Wake Up Narcolepsy is excited to share the Wave 1 results from the Nexus Narcolepsy Registry.  The purpose of the Nexus Registry is to collect information from people with Narcolepsy Type 1 and Type 2 to help narcolepsy researchers better understand this medical disorder and, ultimately, improve the lives of people living with this condition. The two posters below were presented at the APSS Meeting in June 2016.

It is critical that the Nexus Registry gather as much data as possible from as many people affected by Narcolepsy Type 1 and Type 2.  The Nexus Registry is ongoing and the registry staff needs to continue to collect data on the respondents every six months for three years.  WUN encourages those who have received their six month follow up survey to please complete and submit this survey.  Also, if you have not yet registered, but are interested, please click here www.narcolepsyregistry.com to learn more and register!

Wake Up Narcolepsy is a 501c3 non-profit organization dedicated to improving the lives of people with narcolepsy by speeding narcolepsy diagnosis through greater awareness, education and funding medical research to find a cure.