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  • Updates & News

    • News
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    • Featured Research + Grant Details
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Apr 20 2020

Narcolepsy Interview & Survey Opportunity

Narcolepsy Interview & Survey Opportunity $50 - $125 paid incentive Pillar Patient Advocates are looking to include...

17:05 / News
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Apr 17 2020

NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19

An Announcement From NORD Washington, DC, April 15, 2020— At this time of crisis and with the...

04:02 / News
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Apr 07 2020

Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient Reported Outcomes Scale (PN-PROS)

Share your experience living with narcolepsy!   Narcolepsy is a chronic neurologic condition that tends to occur...

20:53 / News
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Apr 07 2020

Avadel Pharmaceuticals Completes the REST-ON Phase 3 Pivotal Trial of FT218 for Excessive Daytime Sleepiness and Cataplexy in Patients with Narcolepsy

Avadel Pharmaceuticals plc (Nasdaq: AVDL), a company focused on developing FT218, an investigational, once-nightly formulation of...

20:09 / News
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Mar 27 2020

Free Upcoming Webinar Hosted by NORD – A Rare Response: Addressing the COVID-19 Pandemic

“As leaders in the rare community, we recognize that community members are worried. Do you...

21:42 / News
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Mar 18 2020

Canadian Sleep Society – 2020 Montreal Education Meeting

The 2020 CSS Educational Meeting will take place from May 29th till May 31st in Montreal at le Palais...

17:37 / News
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Feb 27 2020

#WhenIWakeUp – a narcolepsy awareness campaign

When WE, in the narcolepsy community, wake up, we experience many emotions, contradictory thoughts, symptoms,...

21:10 / News
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Feb 24 2020

A Retrospective Analysis of Clinical Characteristics of Childhood

This week's article featuring Dr. Indra Narang, of SickKids Toronto, is a retrospective analysis of...

16:39 / News
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Feb 21 2020

Clinical Study Opportunity- Sparkle 1501 Study

At Wake Up Narcolepsy one of our priorities is to help advance the medical understanding about...

20:50 / News
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Feb 17 2020

Family Functioning Among Adolescents with Narcolepsy

Dr. Indra Narang, of SickKids Toronto, had the study- Family Functioning Among Adolescents With Narcolepsy recently...

15:25 / News
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