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May 19 2020

Registration is OPEN for our first WUN Narcolepsy Webinar: Kansas City Education Day Re-Imagined on July 18, 2020

Registration is OPEN for our first WUN Narcolepsy Webinar: Kansas City Education Day Re-Imagined on...

14:22 / News
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May 11 2020

American Sleep Apnea Association is hosting its AWAKEtogether Summit virtually!

American Sleep Apnea Association is hosting its AWAKEtogether Summit virtually!   "We invite everyone- patients, caregivers, professionals-...

16:26 / News
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Apr 27 2020

Avadel Pharmaceuticals Announces Positive Topline Results from its Pivotal Phase 3 REST-ON Trial of Once-Nightly FT218 for the Treatment of Excessive Daytime Sleepiness and Cataplexy in Patients with Narcolepsy

The primary analysis of investigational, once-nightly FT218 at 9 g demonstrated highly statistically significant (p<0.001),...

18:08 / News
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Apr 22 2020

WUN’s Narcolepsy Family Summer Camp – Cancelled

We just received an update about WUN's Narcolepsy Family Summer Camp. Center for Courageous Kids...

19:38 / News
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Apr 20 2020

Narcolepsy Interview & Survey Opportunity

Narcolepsy Interview & Survey Opportunity $50 - $125 paid incentive Pillar Patient Advocates are looking to include...

17:05 / News
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Apr 17 2020

NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19

An Announcement From NORD Washington, DC, April 15, 2020— At this time of crisis and with the...

04:02 / News
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Apr 07 2020

Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient Reported Outcomes Scale (PN-PROS)

Share your experience living with narcolepsy!   Narcolepsy is a chronic neurologic condition that tends to occur...

20:53 / News
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Apr 07 2020

Avadel Pharmaceuticals Completes the REST-ON Phase 3 Pivotal Trial of FT218 for Excessive Daytime Sleepiness and Cataplexy in Patients with Narcolepsy

Avadel Pharmaceuticals plc (Nasdaq: AVDL), a company focused on developing FT218, an investigational, once-nightly formulation of...

20:09 / News
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Mar 27 2020

Free Upcoming Webinar Hosted by NORD – A Rare Response: Addressing the COVID-19 Pandemic

“As leaders in the rare community, we recognize that community members are worried. Do you...

21:42 / News
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Mar 18 2020

Canadian Sleep Society – 2020 Montreal Education Meeting

The 2020 CSS Educational Meeting will take place from May 29th till May 31st in Montreal at le Palais...

17:37 / News
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