Harmony Biosciences Hosts Summit Which Sheds Light on Impact of Sleep Disruption in Rare Diseases
The commonality of sleep disruption in people living with rare diseases not previously recognized. On World...
The commonality of sleep disruption in people living with rare diseases not previously recognized. On World...
February 28, 2021, was Rare Disease Day! It's a day where over 7,000 unique diseases...
Join Claire Crisp, our Executive Director, to hear what's going on "Behind the Scenes @...
!! SAVE THE DATE !! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Wake Up Narcolepsy is excited to announce our upcoming Education...
Avadel Pharmaceuticals announced this week that the U.S. Food and Drug Administration (FDA) has accepted...
This past Sunday, February 28, 2021, was Rare Disease Day! It's a day where over...
Join us on March 1, 2021, for a FREE open forum for parents and caregivers...
For too long our society and culture have communicated that taking naps = laziness. We,...
There is a new clinical trial opportunity for PWNs located in Canada. To be eligible to...
Join us on January 25, 2021, for a FREE open forum for parents and caregivers...