19 May Registration is OPEN for our first WUN Narcolepsy Webinar: Kansas City Education Day Re-Imagined on July 18, 2020
Registration is OPEN for our first WUN Narcolepsy Webinar: Kansas City Education Day Re-Imagined on...
11 May American Sleep Apnea Association is hosting its AWAKEtogether Summit virtually!
American Sleep Apnea Association is hosting its AWAKEtogether Summit virtually! "We invite everyone- patients, caregivers, professionals-...
27 Apr Avadel Pharmaceuticals Announces Positive Topline Results from its Pivotal Phase 3 REST-ON Trial of Once-Nightly FT218 for the Treatment of Excessive Daytime Sleepiness and Cataplexy in Patients with Narcolepsy
The primary analysis of investigational, once-nightly FT218 at 9 g demonstrated highly statistically significant (p<0.001),...
22 Apr WUN’s Narcolepsy Family Summer Camp – Cancelled
We just received an update about WUN's Narcolepsy Family Summer Camp. Center for Courageous Kids...
20 Apr Narcolepsy Interview & Survey Opportunity
Narcolepsy Interview & Survey Opportunity $50 - $125 paid incentive Pillar Patient Advocates are looking to include...
17 Apr NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19
An Announcement From NORD Washington, DC, April 15, 2020— At this time of crisis and with the...
07 Apr Focus Group Participants Needed to Develop a Pediatric Narcolepsy Patient Reported Outcomes Scale (PN-PROS)
Share your experience living with narcolepsy! Narcolepsy is a chronic neurologic condition that tends to occur...
07 Apr Avadel Pharmaceuticals Completes the REST-ON Phase 3 Pivotal Trial of FT218 for Excessive Daytime Sleepiness and Cataplexy in Patients with Narcolepsy
Avadel Pharmaceuticals plc (Nasdaq: AVDL), a company focused on developing FT218, an investigational, once-nightly formulation of...
27 Mar Free Upcoming Webinar Hosted by NORD – A Rare Response: Addressing the COVID-19 Pandemic
“As leaders in the rare community, we recognize that community members are worried. Do you...
18 Mar Canadian Sleep Society – 2020 Montreal Education Meeting
The 2020 CSS Educational Meeting will take place from May 29th till May 31st in Montreal at le Palais...