Center for Courageous Kids
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Read Featured Presenter's Bio
Liz Guckian is a 24-year-old PWN from New Jersey, who was diagnosed with Narcolepsy Type 1 at age 12. She now works in digital advertising and lives in New York City.
Read Featured Presenter's Bio
Dr. Luis Ortiz is an Assistant Professor of Pediatrics at Johns Hopkins University and physician in the Sleep Center at Johns Hopkins All Children’s Hospital. He joined the medical staff in 2018. He was diagnosed with narcolepsy at age 21.
Dr. Ortiz earned his medical degree from the University of Rochester. He completed his residency in internal medicine and pediatrics at the Charleston Area Medical Center. He also completed a fellowship in pediatric pulmonology at the Johns Hopkins University School of Medicine in Baltimore, Maryland. He also completed a fellowship in sleep medicine at the Children’s Hospital of Philadelphia and the Hospital of the University of Pennsylvania in Philadelphia.
His clinical interests include narcolepsy, hypersomnia, obstructive sleep apnea, and skeletal dysplasias. His research interests include examining the interaction of sleep disorders on chronic pediatric diseases such bronchopulmonary dysphasia, asthma, and developmental delay. He has worked extensively in creating educational content for people with narcolepsy as well as advocating for patients with rare diseases.
Thank you to our sponsors
Fall 2022 Camp Schedule
Friday
- 2:00pm – 3:00pm
- Volunteer Arrival
- 3:00pm – 4:30pm
- Volunteer Orientation
- 5:30pm
- Family Orientation in the Dining Hall
- 6:00pm
- Dinner in the Dining Hall
- 7:00pm
- Family Photo in the Dining Hall
- 7:30pm-8:45pm
- Red & Yellow Lodge: S’mores/Karaoke in the Dining Hall & Bingo in the Adventure Lodge
- 9:00pm
- Staff Meeting in the Dining Hall
Friendly Reminder: 10:00pm-6:30am is quiet time in lodges. The Dining Hall and the Gym will be open 24/7. The doors in the lodges are heavy and loud. Please keep that in mind when opening and closing the doors in your rooms. THANK YOU!!!
Saturday
- 7:30am – 8:15am
- Early Risers
Arts & Crafts, Woodshop & Music
Coffee House for moms in the Adventure Lodge with speaker Diana Anderson. Her topic will be “Mental Wellness and Self Care for Caregivers
- 8:30am
- Breakfast in the Dining Hall
- 9:15am
- Morning Aerobics in the Dining Hall
*Remember to wear closed toed shoes to the Horse Barn and Archery*
- 9:30am – 10:45am
- Blue Lodge/Red Lodge: Mini Golf & Nature & Cooking & Fishing
Green Lodge/Yellow Lodge: Archery & Woodshop & Arts and Crafts - 11:00am – 12:15
- Blue Lodge/Red Lodge: Archery & Woodshop & Arts and Crafts
Green Lodge/Yellow Lodge: Mini Golf & Nature & Cooking & Fishing
| Horseback Riding Schedule: | |||
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Red |
Blue |
Green |
Yellow |
- 12:30pm
- Lunch in the Dining Hall
- 1:30pm – 3:00pm
- Siesta
Cubby’s Closet is open 1:30pm-2:30pm - 3:00pm – 4:30 pm
- Campers and Siblings: Carnival in the gym! Parents’ gather in dining hall for guest speaker Thomas Gow. His topic will be “Navigating your Narcolepsy Journey.”
- 4:30pm– 5:45pm
- All Camp Swim
- 6:00pm
- Dinner in the Dining Hall
- 7:30pm – 8:30 pm
- Red & Yellow Lodge: Bowling in the Fun Center and Swimming in the Pool
Blue & Green Lodge: S’mores/Karaoke in the Dining Hall & Bingo in the Adventure Lodge
Older Camper Activity (Ages 14+): Meet in center Courtyard
*The Dining Hall and the Gym will remain open. Children under the age of 18 must be accompanied by an adult at all times. Thank you!*
Sunday
- 7:30am
- Fun Center, or Nondenominational service in gym (optional)
- 8:30am
- Breakfast in the Dining Hall
- 9:00am
- Closing Ceremonies in the Dining Hall
- 9:15am
- Morning Aerobics in the Dining Hall
- 9:30am – 10:45am
- Stage Day
- 11:00am
- CCK Farewell
