Living With Narcolepsy: Thomas Heckmaster’s Journey to Advocacy and Marathon Running
By Tana Bao MSN, NP, RN Thomas Heckmaster is a 23 year old person living......
Wake Up Narcolepsy is a 501(c)(3) not for profit organization that seeks to raise awareness, bringing direction to the search for a cure while providing a strong community of support. Stay current and connect with WUN.
Narcolepsy by the Numbers
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Narcolepsy affects 1 in every 2,000 Americans and 3 million people worldwide.
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It is estimated that up to 50% of patients with Narcolepsy may be undiagnosed.
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Typical onset of Narcolepsy is between the ages of 10 and 20 years old, but can occur in early childhood.
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On average, patients have 6 physician visits before receiving a Narcolepsy diagnosis.
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Recruiting Participants with Narcolepsy for Research in Montreal
PATHOPHYSIOLOGY OF NARCOLEPSY AND IDIOPATHIC HYPERSOMNIA: A MULTIMODAL NEUROIMAGING STUDY The research includes an MRI scan session......
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Mother’s Day and Narcolepsy: Reflections from a Mom and Daughter Duo
By Tana Bao MSN, NP, RN There are few bonds as strong as the one that......
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Avadel Pharmaceuticals Announces Final FDA Approval of LUMRYZ™ (sodium oxybate) for Extended-Release Oral Suspension as the First and Only Once-at-Bedtime Oxybate for Cataplexy or Excessive Daytime Sleepiness in Adults with Narcolepsy
Avadel Pharmaceuticals May 1 2023 PDF https://investors.avadel.com/news-releases/news-release-details/avadel-pharmaceuticals-announces-final-fda-appro...
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Partnering with our community, sleep centers, and experts, we drive funding initiatives towards a deeper understanding of narcolepsy, better treatment options and ultimately a cure.