march, 2023
Event Details
Join Emily Barker, PWN, and Kimberly Cassidy, Parent of PWN and WUN Board Member, as they share their narcolepsy journeys and how they received a diagnosis. They will discuss navigating
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Event Details
Join Emily Barker, PWN, and Kimberly Cassidy, Parent of PWN and WUN Board Member, as they share their narcolepsy journeys and how they received a diagnosis. They will discuss navigating a new narcolepsy diagnosis and share resources and tips and tricks that they found helpful at the beginning of their journeys. They will also share what they wish they had known or done. This will be a very informative discussion for anyone with narcolepsy and especially for those newly diagnosed with narcolepsy.
Please Note: Pre-registration is required.
Time
February 9 (Thursday) 2:00 pm - March 9 (Thursday) 4:00 pm
Event Details
To commemorate Sleep Awareness Week® March 12 – 18, 2023, Wake Up Narcolepsy (WUN) is holding a special contest that highlights the
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Event Details
To commemorate Sleep Awareness Week® March 12 – 18, 2023, Wake Up Narcolepsy (WUN) is holding a special contest that highlights the effects of narcolepsy and gives you a chance to win great prizes!
We want to show the world what your narcolepsy looks like by giving you the chance to draw a picture or produce a photo of how your narcolepsy presents. Submit your entry through email to have it added to a dream cloud template with your name. You will be entered to win a $25 Amazon Gift Card and Wake Up Narcolepsy Swag Bag.
Let’s get creative and show the world what narcolepsy looks like! Entries can be digitally drawn, hand drawn or photos that represent an aspect of your Narcolepsy.
We will collect the entries from Feb 17th – March 3rd and then kick off Sleep Awareness Week® with them!
Learn more and see examples here
Time
February 12 (Sunday) 12:00 am - March 17 (Friday) 12:00 am
Event Details
Introducing Wake Up Narcolepsy’s #LivingRare fundraiser for Rare Disease Day 2023! To honor those out there who live rare each day, WUN is raising money from February 27th through March 3rd
Event Details
Introducing Wake Up Narcolepsy’s #LivingRare fundraiser for Rare Disease Day 2023!
To honor those out there who live rare each day, WUN is raising money from February 27th through March 3rd to help fund our Patient Advocacy & Engagement program!
Our fundraiser can be found here
Time
February 27 (Monday) 12:00 am - March 3 (Friday) 12:00 am
02mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Thursday) 6:30 pm
03mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
Time
(Friday) 4:00 pm
04mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Saturday) 1:30 pm
08mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 7:00 pm
08mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 10:00 pm
09mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Thursday) 6:30 pm
10mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
Time
(Friday) 4:00 pm
11mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Saturday) 1:30 pm
15mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 7:00 pm
15mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 10:00 pm
16mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Thursday) 6:30 pm
17mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
Time
(Friday) 4:00 pm
18mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Saturday) 1:30 pm
21mar8:00 pmSupport Group: Pregnancy & Parenting with Narcolepsy Week 18:00 pm EST
Event Details
Topic: Week 1: Narcolepsy Before the Baby Focus: Prenatal consultations, Birth control and narcolepsy meds, Preconception and medication More Info
Event Details
Topic: Week 1: Narcolepsy Before the Baby
Focus: Prenatal consultations, Birth control and narcolepsy meds, Preconception and medication
Time
(Tuesday) 8:00 pm
22mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 7:00 pm
22mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 10:00 pm
23mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Thursday) 6:30 pm
24mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
Time
(Friday) 4:00 pm
25mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Saturday) 1:30 pm
28mar8:00 pmSupport Group: Pregnancy & Parenting with Narcolepsy Week 28:00 pm EST
Event Details
Topic: Week 2: Narcolepsy Before the Baby Focus: Narcolepsy and sexual intimacy, Family planning with narcolepsy More Info
Event Details
Focus: Narcolepsy and sexual intimacy, Family planning with narcolepsy
Time
(Tuesday) 8:00 pm
29mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 7:00 pm
29mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Event Details
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Wednesday) 10:00 pm
30mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Event Details
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Event Details
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
Time
(Thursday) 6:30 pm
31mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Event Details
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
Time
(Friday) 4:00 pm