march, 2023
Join Emily Barker, PWN, and Kimberly Cassidy, Parent of PWN and WUN Board Member, as they share their narcolepsy journeys and how they received a diagnosis. They will discuss navigating
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Join Emily Barker, PWN, and Kimberly Cassidy, Parent of PWN and WUN Board Member, as they share their narcolepsy journeys and how they received a diagnosis. They will discuss navigating a new narcolepsy diagnosis and share resources and tips and tricks that they found helpful at the beginning of their journeys. They will also share what they wish they had known or done. This will be a very informative discussion for anyone with narcolepsy and especially for those newly diagnosed with narcolepsy.
Please Note: Pre-registration is required.
February 9 (Thursday) 2:00 pm - March 9 (Thursday) 4:00 pm
To commemorate Sleep Awareness Week® March 12 – 18, 2023, Wake Up Narcolepsy (WUN) is holding a special contest that highlights the
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To commemorate Sleep Awareness Week® March 12 – 18, 2023, Wake Up Narcolepsy (WUN) is holding a special contest that highlights the effects of narcolepsy and gives you a chance to win great prizes!
We want to show the world what your narcolepsy looks like by giving you the chance to draw a picture or produce a photo of how your narcolepsy presents. Submit your entry through email to have it added to a dream cloud template with your name. You will be entered to win a $25 Amazon Gift Card and Wake Up Narcolepsy Swag Bag.
Let’s get creative and show the world what narcolepsy looks like! Entries can be digitally drawn, hand drawn or photos that represent an aspect of your Narcolepsy.
We will collect the entries from Feb 17th – March 3rd and then kick off Sleep Awareness Week® with them!
Learn more and see examples here
February 12 (Sunday) 12:00 am - March 17 (Friday) 12:00 am
Introducing Wake Up Narcolepsy’s #LivingRare fundraiser for Rare Disease Day 2023! To honor those out there who live rare each day, WUN is raising money from February 27th through March 3rd
Introducing Wake Up Narcolepsy’s #LivingRare fundraiser for Rare Disease Day 2023!
To honor those out there who live rare each day, WUN is raising money from February 27th through March 3rd to help fund our Patient Advocacy & Engagement program!
Our fundraiser can be found here
February 27 (Monday) 12:00 am - March 3 (Friday) 12:00 am
02mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
03mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
04mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
08mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
08mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
09mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
10mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
11mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
15mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
15mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
16mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
17mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
18mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
21mar8:00 pmSupport Group: Pregnancy & Parenting with Narcolepsy Week 18:00 pm EST
Topic: Week 1: Narcolepsy Before the Baby Focus: Prenatal consultations, Birth control and narcolepsy meds, Preconception and medication More Info
Topic: Week 1: Narcolepsy Before the Baby
Focus: Prenatal consultations, Birth control and narcolepsy meds, Preconception and medication
(Tuesday) 8:00 pm
22mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
22mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
23mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
24mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm
25mar1:30 pmSupport Group: Living with Narcolepsy1:30 pm EST
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Saturday) 1:30 pm
28mar8:00 pmSupport Group: Pregnancy & Parenting with Narcolepsy Week 28:00 pm EST
Topic: Week 2: Narcolepsy Before the Baby Focus: Narcolepsy and sexual intimacy, Family planning with narcolepsy More Info
(Tuesday) 8:00 pm
29mar7:00 pmSupport Group: Living with Narcolepsy7:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 7:00 pm
29mar10:00 pmSupport Group: Living with Narcolepsy (West Coast)10:00 pm EST Event Type :Support
Topic: Navigating Narcolepsy Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support, newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Wednesday) 10:00 pm
30mar6:30 pmSupport Group: Living with Narcolepsy - Canada6:30 pm EST
Topic: Navigating Narcolepsy Focus: Support for Canadians - newly diagnosed, symptoms management, work, relationships, health, specialist appointments. More Info
Topic: Navigating Narcolepsy
Focus: Support for Canadians – newly diagnosed, symptoms management, work, relationships, health, specialist appointments.
(Thursday) 6:30 pm
31mar4:00 pmSupport Group: Living with Narcolepsy - LGBTQIA+4:00 pm EST
Topic: Living with narcolepsy within the LGBTQIA+ community Focus: Isolation, symptoms, support, identity, relationships More Info
Topic: Living with narcolepsy within the LGBTQIA+ community
Focus: Isolation, symptoms, support, identity, relationships
(Friday) 4:00 pm