Wake Up Narcolepsy Education Day at Sleep Expo 2019

Understanding Narcolepsy and Hypersomnia: Insights and Perspectives

In Collaboration with the Hypersomnia Foundation and World Sleep

Wake Up Narcolepsy in collaboration with Hypersomnia Foundation is hosting an Education Day at Sleep Expo 2019. This one day conference is for people with narcolepsy and/or idiopathic hypersomnia, their families, educators, clinicians and researchers. Leading experts will be sharing their latest research on treatment options, impact of narcolepsy and idiopathic hypersomnia, comorbidity and how to live a full life with narcolepsy and hypersomnia.

This special Education Day is in collaboration with the Hypersomnia Foundation and World Sleep. This will offer a unique opportunity for people with narcolepsy and/or idiopathic hypersomnia to mix and mingle with sleep doctors, clinicians and researchers from World Sleep 2019. It takes place during the first-ever Sleep Expo through World Sleep 2019, a full scientific congress on sleep medicine and research.

Presentations from Dr. Thomas Scammell, Dr. Brian Murray, Dr. Yves Dauvilliers, Kelsey Biddle, Dr. Indra Narang, and Shelly Weiss will address pertinent sleep disorder issues including mental health, transitional care, lifestyle, current research and treatment. There will also be special breakout panel discussions focusing on narcolepsy and idiopathic hypersomnia.

In registering for Wake Up Narcolepsy Education Day at Sleep Expo 2019 you will ALSO have access to Sunday, September 22, 2019 Sleep Expo Program– including Public Lecture Series, Facilitator-led Discussion, and Sleep-related Author Tables.

 

The Wake Up Narcolepsy Education Day is located in Vancouver, British Columbia during Sleep Expo 2019 at the Vancouver Convention Centre West which is located at 1055CanadaPl Vancouver, BC V6C0C3 in rooms 109 and 110.

Important Information

Registration- This event is free!

Food-  We are not providing breakfast or lunch. Please be prepared to bring or pick up lunch during our lunch break.

Don’t forget your passport!- If you are joining us from the United States please remember to bring your passport before you travel to Vancouver.

  • If you don’t currently have a passport please apply now! It takes 4-6 weeks to process your passport application. For more information about passports click here
  • If you do currently have a passport please double check that it is still valid. Again it may take up to 6 weeks to get it renewed. For more information about passports click here

Book your hotel- We recommend that you book your hotel room or Airbnb sooner rather than later! World Sleep 2019 and an Elton John concert will be going on during the weekend of WUN Education Day at Sleep Expo 2019.

 

Parking Information There is ample parking at the Vancouver Convention Centre for more information please click here.

Getting to Vancouver Convention Centre The Vancouver Convention Center has great information about how to travel to the convention centre. For information please click here.

Schedule of the Day

Speaker Bios

Dr. Thomas Scammel

Dr. Thomas Scammell received his Doctor of Medicine degree from the University of Massachusetts Medical School, where he trained in internal medicine.  He also completed a residency in Neurology at the University of California, San Francisco, and a fellowship in Sleep Medicine at Beth Israel Deaconess Medical Center.

Dr. Scammell is a Professor in Neurology at Harvard Medical School, Beth Israel Deaconess Medical Center, and Boston Children’s Hospital. He serves as an ad hoc reviewer for New England Journal of Medicine, Annals of Neurology, Nature, Cell, and Neuron, and was a Deputy Editor of SLEEP.  He is a member of the International Classification of Sleep Disorders Task Force and a former member of the Sleep Research Society Board of Directors and the APSS Program Committee.

The author of over 100 journal articles, Dr. Scammell has lectured both nationally and internationally on narcolepsy and the neurobiology of sleep and wakefulness. His current research interests include identifying how loss of orexin signaling results in sleepiness and cataplexy, development of new medications for narcolepsy, interactions of sleep and pain, and sleep disorders in Prader-Willi Syndrome.

Dr. Shelly Weiss

Dr. Shelly Weiss is a Pediatric Neurologist at Hospital for Sick Children and Professor, Faculty of Medicine at University of Toronto, Toronto, Canada. Dr. Weiss was previously the President of the Canadian Sleep Society and is currently the Vice-Chair of the Royal College of Physicians and Surgeons of Canada’s Diploma in Sleep Disorder Medicine. Dr.Weiss directs the Sleep Neurology Clinic at HSC. She has provided at educational events and has experience in research and the clinical care of children and adolescents with narcolepsy.

Dr. Brian Murray

Brian J. Murray is an associate professor at the University of Toronto in neurology and is the director of the sleep laboratory at Sunnybrook Health Sciences Centre. He obtained board certification in Neurology, and Sleep Medicine through Harvard University. His major clinical and research interests are in neurological aspects of sleep medicine, and the relationship between sleep and behaviour.  He is the Head of the Division of Neurology at Sunnybrook, Chair of the Sunnybrook Research Ethics Board, and the Chair of the Royal College of Physicians and Surgeons of Canada Specialty Committee in Neurology.

Dr. Indra Narang

Dr. Indra Narang is the Director of Sleep Medicine at the Hospital for Sick Children, Toronto, Canada. She is also an Associate Professor at the University of Toronto. Dr. Narang specializes in many sleep disorders including pediatric obstructive sleep apnea and narcolepsy. She established the first pediatric narcolepsy clinic in Toronto which is now a large multi-disciplinary team effort.

Her current research focusses on the impact of Narcolepsy on mental health in children and their families. Dr. Narang is qualitatively exploring the symptoms of narcolepsy on the quality of life and functioning in adolescents.

Kelsey Biddle

Kelsey Biddle graduated from Dartmouth College in 2017 with a bachelor’s degree in Neuroscience. After college, she began working as a clinical research coordinator in the Department of Psychiatry at Brigham & Women’s and Massachusetts General Hospitals. Here, Kelsey performs cognitive assessments for the Harvard Aging Brain Study, and investigates the neuropsychiatric symptoms of Alzheimer’s Disease with Dr. Nancy Donovan, a geriatric psychiatrist. Kelsey was diagnosed with type 1 narcolepsy with cataplexy in January of 2018 at the age of 22 after 6 weeks of symptoms.  As a neuroscience major and daughter of an immunotherapy focused physician-scientist, she was in the “right place at the right time” to be the first, human subject in a novel immunotherapy intervention trial for new-onset narcolepsy.  Kelsey decided to share her personal story to raise awareness about this misunderstood autoimmune neurologic disorder, and prove to herself and others that one can overcome adversity and setbacks and adapt in a positive way. She aspires to a career in neuropsychiatry & healthcare and hopes to contribute to the advance of knowledge and innovative treatments in the field of neuropsychiatry.

Dr. Yves Dauvilliers

Dr. Yves Dauvilliers is the Professor of Neurology and Physiology, and Head of the clinical and research activity of the sleep laboratory at the University of Montpellier, France since 2005. He is a member of the scientific board of the French Sleep Medicine and Research Society, a member of the European Sleep Research Society, European-Narcolepsy Network, International REM sleep behavior study group, and of the American Academy of Sleep Medicine. He is the Director of the Sleep Disorders Centre, Department of Neurology, Gui de Chauliac Hospital, Montpellier since 2005, a member of the Clinical Research Department, University Hospital, Montpellier since 2000, a member of the scientific board of the University of Montpellier, associate coordinator of the Gui-de-Chauliac University Hospital, Montpellier-France, since 2012, Editor in Chief of Frontiers in Neurology, Section “Sleep and Chronobiology”, and Member of the Editorial Board of Sleep Medicine and Sleep. He performed many research studies in the diagnosis, epidemiology, pathophysiology and therapy of several sleep disorders, neurological disorders including narcolepsy, hypersomnias, parasomnias and RLS. He is a member of the research group INSERM U1061 and coordinator of the Sleep research axis. He is the coordinator of the French National Reference Network for Orphan Diseases (Narcolepsy, Hypersomnia, Kleine-Levin Syndrome) since 2006. Since 2002, he was the Principal Investigator in several open and placebo-controlled national and multi-national clinical trials in sleep disorders on narcolepsy, hypersomnia, RLS, parasomnias and insomnia, and involved in the conception and design of these studies. He is the author or coauthor of more than 325 papers published in international and national peer-reviewed journals, several book chapters, and he also edited three French book related to sleep medicine.

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A SPECIAL THANKS TO OUR SPONSORS

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