Effective Date: 4/30/2026
Wake Up Narcolepsy, Inc. (“we,” “our,” or “us”) respects your privacy and is committed to protecting your personal information. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website.
1. Information We Collect
We may collect personal information that you voluntarily provide when you:
- Make a donation
- Sign up for our newsletter
- Register for events or programs
- Complete forms or surveys
- Contact us directly
This information may include:
- Name
- Email address
- Mailing address
- Phone number
- Payment information (processed securely via third-party providers)
- Any other information you choose to provide
We may also automatically collect certain information when you visit our website, including:
- IP address
- Browser type
- Device information
- Pages visited and time spent on the site
2. How We Use Your Information
We use the information we collect to:
- Process donations and transactions
- Communicate with you about our programs, events, and updates
- Send newsletters and fundraising communications
- Respond to inquiries and support requests
- Improve our website and user experience
- Comply with legal obligations
3. Payment Processing and Donations
We use Neon CRM (Neon One) to process donations and manage donor information.
Payment information is processed securely by third-party payment processors and is not stored on our servers. These providers use industry-standard security measures to protect your data.
4. Cookies and Tracking Technologies
We use cookies and similar technologies to:
- Enhance your browsing experience
- Analyze website traffic and usage
- Understand how visitors interact with our website
We use Google Analytics to collect and analyze information about how visitors use our website. Google Analytics may use cookies and similar technologies to collect information about your use of the website. This information is used in aggregated form to analyze website traffic and improve our services.
You can control cookies through your browser settings. Disabling cookies may affect certain features of the website.
5. Sharing of Information
We do not sell, trade, or rent your personal information.
We may share your information with trusted third parties who assist us in operating our website and services, including:
- Donation and CRM platforms
- Email communication providers
- Website hosting and analytics providers
We may also share or allow data collection by third-party platforms when you interact with embedded content or external services through our website. These may include services such as:
- Video platforms (e.g., YouTube)
- Event and fundraising platforms (e.g., OneCause)
- Webinar and meeting platforms (e.g., Zoom)
- Online support communities (e.g., HeyPeers)
- Merchandise and fundraising platforms (e.g., Bonfire)
- Nonprofit review platforms (e.g., GreatNonprofits)
When you interact with these third-party services, they may collect information directly from you and process it according to their own privacy policies. We encourage you to review their policies when using those services.
We may also disclose information when required by law or to protect our rights, property, or safety.
6. Data Retention
We retain personal information only for as long as necessary to:
- Fulfill the purposes outlined in this policy
- Comply with legal, accounting, or reporting requirements
The criteria used to determine retention periods include the nature of the information, the purposes for which it was collected, and applicable legal requirements.
7. Your Privacy Rights
Depending on your location, you may have the right to:
- Request access to the personal information we hold about you
- Request correction of inaccurate information
- Request deletion of your personal information
- Opt out of receiving marketing communications
To exercise these rights, please contact us at info@wakeupnarcolepsy.org.
8. Additional Rights for European Economic Area (EEA) Residents
If you are located in the European Economic Area (EEA), you have certain rights under the General Data Protection Regulation (GDPR), including:
- The right to access, update, or delete your personal data
- The right to restrict or object to processing
- The right to data portability
- The right to withdraw consent at any time
We process your personal data based on one or more of the following legal bases:
- Your consent
- The performance of a transaction (such as processing a donation)
- Our legitimate interests in operating and improving our organization and services
- Compliance with legal obligations
Your information may be transferred to and processed in the United States, where our servers and service providers are located.
9. California Privacy Rights
If you are a California resident, you have rights under the California Consumer Privacy Act (CCPA), as amended by the CPRA, including:
- The right to know what personal information we collect and how it is used
- The right to request deletion of your personal information
- The right to correct inaccurate information
- The right to opt out of the sale or sharing of personal information
We do not sell or share personal information as defined under California law.
We honor legally required browser-based opt-out signals, such as Global Privacy Control (GPC), where applicable.
You may exercise your rights by contacting us at info@wakeupnarcolepsy.org.
10. Email Communications
We may send you emails related to:
- Donations or transactions
- Organizational updates
- Events and fundraising efforts
You can unsubscribe at any time by clicking the “unsubscribe” link in our emails.
We comply with the CAN-SPAM Act.
11. Data Security
We implement reasonable administrative, technical, and physical safeguards to protect your personal information.
However, no method of transmission over the Internet is 100% secure.
12. Children’s Privacy
Our website is not intended for children under the age of 13. We do not knowingly collect personal information from children under 13 in accordance with the Children’s Online Privacy Protection Act (COPPA).
If we become aware that we have collected personal information from a child under 13 without parental consent, we will take steps to delete that information.
If you believe a child has provided us with personal information, please contact us at info@wakeupnarcolepsy.org.
13. Third-Party Links
Our website may contain links to third-party websites. We are not responsible for the privacy practices of those websites.
14. Changes to This Policy
We may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated effective date.
15. Contact Us
If you have any questions about this Privacy Policy or your personal information, please contact us:
Wake Up Narcolepsy, Inc.
P.O. Box 60293
Worcester, MA 01606