WUN Summer Events and MORE…

 

Summer is in full swing and we wanted to share with you all of our current supportive programs and upcoming events.

 

WUN Programs &  Upcoming Events

 

Living with Narcolepsy Online Support Group

On June 26th, join the Living with Narcolepsy online support group for a special guest speaker. Arianna Denison from Canine Partners for Life will be sharing about the benefits of service dogs for PWNs.

The mission of Canine Partners for Life is to increase the independence and quality of life of individuals with physical, developmental, and cognitive disabilities or who are in other situations of need. We achieve our mission by providing and sustaining professionally trained service and companion dogs. The lives of those we serve will be forever changed through the opportunities and independence afforded by a steadfast relationship with a service or companion dog.

 

 

 

2020 Boston WUNners Fundraiser 

Each year WUN participates in the highly competitive Boston Marathon and we need your help to get our team there to raise awareness. The funds raised by Wake Up Narcolepsy through the John Hancock Boston Marathon Non-Profit Program will be donated directly to narcolepsy researchers working to gain a deeper understanding of this serious medical disorder in order to improve the lives of those suffering from narcolepsy. We are deeply grateful to our dedicated team members who work tirelessly to both train for this prestigious athletic event, and reach out to friends, family and colleagues for support.

 

 

 

 

 

Narcolepsy 360 Podcast

Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder.

The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, care-giver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From latest research to life-style tips, our podcasts shed light on the less discussed issues around narcolepsy.

Join Claire Crisp, our Executive Director, as she chats with people within our community. We recently had Julie Flygare from Project Sleep, Dr. David Rye, Nicole Jeray, and more!

 

 

 

Online Support Groups

Online Support Groups offer valuable support through a convenient platform. Below is this week’s schedule of support group meetings. From the comfort of your home, you can connect with other PWNs live in a video-based peer to peer support groups.

Our current schedule is:
TUESDAYS: Pregnancy and Parenting with Narcolepsy
WEDNESDAYS: Living with Narcolepsy
SUNDAYS: Young Adults (18-30) with Narcolepsy

 

 

 

 

 

WUN Education @ Sleep Expo 2019

WUN in collaboration with Hypersomnia Foundation is hosting an Education Day at Sleep Expo 2019. This will offer a unique opportunity for people wh narcolepsy and/or idiopathic hypersomnia to mix and mingle with sleep doctors, clinicians and researchers from World Sleep 2019. It takes place during the first-ever Sleep Expo through World Sleep 2019, a full scientific congress on sleep medicine and research.

Presentations from Dr. Thomas Scammell, Dr. Brian Murray, Dr. Yves Dauvilliers, Kelsey Biddle, Dr. Indra Narang, and Shelly Weiss will address pertinent sleep disorder issues including mental health, transitional care, lifestyle, current research and treatment. There will also be special breakout panel discussions focusing on narcolepsy and idiopathic hypersomnia. In registering for Wake Up Narcolepsy Education Day at Sleep Expo 2019 you will ALSO have access to Sunday, September 22, 2019, Sleep Expo Program– including Public Lecture Series, Facilitator-led Discussion, and Sleep-related Author Tables.⠀

This education day is free! To register for the event click the button below.

 

Camp for CWNs and families

Attention all families with a CWN…Join WUN at camp next October 11-13, 2019. Located at the wonderful Center for Courageous Kids in Scottsville, KY, this weekend camp will be filled with fun activities for families and children with narcolepsy.
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If your family would to attend, please apply on Center for Courageous Kids’ website.

 

 

We hope you can join us participating in these services and events.

Claire Crisp
Executive Director

 



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