Nov 20 2024
Syracuse WUN Town Hall Recap
The Syracuse WUN Town Hall took place on November 9th in Baldwinsville, New York!
The event kicked off with a panel of four speakers including a healthcare professional, multiple people living with the disorder and a parent of someone living with it.
Robyn Porpiglio, NP, went first, sharing a brief overview of Narcolepsy diagnosis and treatments. The other panelists followed by sharing their personal stories. The conversational atmosphere allowed audience questions to be answered from multiple perspectives.
There was a large focus on advocacy, whether it be done by the person living with the disorder, a loved one, a teacher or a HCP. Panelists emphasized the importance of support systems.
Farkle, a dog living with Narcolepsy, also made a guest appearance! Wake Up Narcolepsy (WUN) announced a collaboration with Farkle & Friends back in February and has worked on awareness efforts together since. Wendy, Farkle’s owner, read the book about his story before raffling off signed copies of the series!
Event sponsors included Jazz Pharmaceuticals and Takeda Pharmaceuticals.
WUN Town Halls are local events put on by Wake Up Narcolepsy and our volunteers in communities around North America. Learn more and get involved here!