Sep 15 2025
 WUN Signs Community Support Letter for the Rare Pediatric Disease PRV Program

Posted at Sep 15 2025
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On September 10th, 2025, a letter was sent to House and Senate leadership by EveryLife Foundation for Rare Diseases, National Organization for Rare Disorders (NORD) and 190 advocacy organizations.

Wake Up Narcolepsy (WUN) signed on to the letter urging Congressional leadership to act swiftly to reauthorize the Rare Pediatric Disease PRV Program.

Learn more about PRV on EveryLife Foundation’s background information page.

The full letter can be found as a PDF here.

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