Nov 21 2019
Wake Up Narcolepsy attends a Sleep Community Capitol Hill Advocacy Day in Washington DC
h in News
On Tuesday, November 19, 2019, Wake Up Narcolepsy joined Project Sleep, the Sleep Research Society and other patient advocates & organizations for a Sleep Community Capitol Hill Advocacy Day in Washington DC. The goal was to increase narcolepsy awareness and educate around the needs for funding narcolepsy research.
The advocates and organizations met with 9 congressional staffers telling their personal stories as parents of children with narcolepsy and advocates for the need for governmental funding for awareness and research for sleep disorders.
All staffers were very interested in the information that was shared and communicated that their congressmen would be interested and supportive of the need for funding.
We are grateful for Tammy Smith, a Wake Up Narcolepsy board member, for representing Wake Up Narcolepsy on this important day! We are also grateful for all the patient advocates and organizations who came together to spread awareness. We are stronger together!
Pictured from left to right
Anne Gallagher from Start School Later, board of directors
Tammy Smith from Wake Up Narcolepsy, board of directors
Lauren Covington a Virginia State Representative Gerald Connolly’s staffer
Anne Taylor from Project Sleep, board of directors
Dr. Scott Williams from the American Alliance for Healthy Sleep