Open Enrollment for TENOR Research Study


Are you transitioning from Xyrem to Xywav? Would you like your experiences to help others? Consider participating in the TENOR study from Jazz Pharmaceuticals.⁠

The TENOR (Transition Experience of persons with Narcolepsy taking Oxybate in the Real-world) study is a web-based, observational study, for adults (18 years or older) who have been diagnosed with narcolepsy and are transitioning from Xyrem to Xywav.⁠

The purpose of this study is to observe the dosing practices during your transition, learn about the safety and tolerability of the medication, and overall treatment satisfaction.⁠

The information that will be collected will cover the following topics:⁠
• Demographic information⁠
• Brief medical history⁠
• Transition expectations⁠
• Dosing practices⁠
• Narcolepsy symptoms⁠
• Elements of tolerability⁠
• Treatment satisfaction⁠

You may be eligible to participate if you:⁠
• Are aged 18 years or older⁠
• Have been diagnosed with type 1 or type 2 narcolepsy by a physician⁠
• Are able to read and understand English⁠
• Have reliable access to a computer or smartphone with internet connection⁠
• Can commit to the time and study procedures⁠
• Are not a current Jazz Pharmaceuticals employee or an immediate family member of a Jazz employee⁠


Will I be compensated?⁠
If you qualify, you will be compensated for your time during the study period.⁠

Why is this study important?⁠
If you take part in the study, you may help patients, doctors, and researchers better understand how narcolepsy treatments affect people with narcolepsy type 1 (narcolepsy with cataplexy) or narcolepsy type 2 (narcolepsy without cataplexy type). By learning more about your experience, it may be possible to improve outcomes.⁠

Inquire at: tenor-study.researchstudytrial.com?utm_source=patient_advocacy_group&utm_medium=web&utm_campaign=wakeupnarcolepsyinc&r=12