Dec 10 2024
WUN Signs Community Support Letter for the Rare Pediatric Disease PRV Program

Posted at Dec 10 2024
h in News by Cara Weaver

On December 4th, 2024, a letter was sent to Congress by EveryLife Foundation for Rare Diseases, National Organization for Rare Disorders (NORD) and over 200 advocacy organizations.

Wake Up Narcolepsy (WUN) signed on to the letter, which was calling for a long-term extension of the Rare Pediatric Disease Priority Review Voucher (PRV) Program before the December 20th deadline.

Learn more about PRV on EveryLife Foundation’s background information page.

The full letter can be found as a PDF here or on Everylife Foundation’s website.

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Dec 10 2024 WUN Signs Community Support Letter for the Rare Pediatric Disease PRV Program

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Dec 10 2024
WUN Signs Community Support Letter for the Rare Pediatric Disease PRV Program