Jun 14 2019
Narcolepsy Community Update – Claire Crisp Joins Wake Up Narcolepsy as Executive Director
h in Blogs
Narcolepsy Community Update –
I am excited to inform you of a new addition to the Wake Up Narcolepsy (WUN) team. Effective October 1, 2017, Claire Crisp, award-winning author and advocate in the narcolepsy community, joined WUN as the Executive Director. Claire is a mother of three children, one of which is an eleven year old daughter, Mathilda, who has narcolepsy & cataplexy. Her daughter’s narcolepsy was triggered at the age three as a result of the H1N1 vaccine in the UK. In order for her daughter to have access to the best narcolepsy treatments and specialists, in 2010, Claire and her husband made a life changing decision and moved the family of five from England to California. In March 2017, Claire published Waking Mathilda, a book describing her daughter’s journey living with narcolepsy which was recently awarded the Internal Reader’s Favorite Silver Medal and has also been signed for film.
Claire has the passion and determination to lead WUN to achieve its mission: to accelerate narcolepsy research to find a cure and to increase awareness to improve the lives of people with narcolepsy.
We are deeply grateful for your generous donations and continued support which make our work possible. You can learn more about WUN by reaching out to us at firstname.lastname@example.org
With Deep Gratitude,
ps. We still have a couple of spots available on our 2018 WUN Boston Marathon Team – click here if you are interested.