On September 9, 2017, The Hospital for Sick Children in Toronto, Canada in partnership with Wake Up Narcolepsy hosted a Narcolepsy Family Education Day for patients, families and anyone involved in the care of children with Narcolepsy. A highlight of the day was when WUN Co-founder and Board Member, David Gow and WUN Board Member Emeritus, Gordon Gow presented a check to Dr. Indra Narang, Director of Sleep Medicine at The Hospital for Sick Children to help support the narcolepsy research and awareness efforts of her team.
The day included informative lectures for patients and families, where they learned more about the condition from the clinical teams, diet and nutrition for patients with narcolepsy and advances and priorities in narcolepsy research. Other important topics lead by adult neurology, included transitioning from pediatrics to adult care, mindfulness to decrease anxieties and teen specific programming lead by adolescent medicine. The day ended with a question and answer session with the audience and an expert panel.
Approximately 90 people attended the event, which was well received by clinicians, researchers, community members and most importantly patients and families. We were thrilled with the success of this event, and welcomed the feedback of patients and their families. According to a mother of a child with narcolepsy, “I wanted to thank you for inviting us to the Family Education Day, I found it so informative. It was such a comfort to meet other parents with children living with narcolepsy.”
Wake Up Narcolepsy is dedicated to supporting narcolepsy awareness and research to find a cure. To learn more about Wake Up Narcolepsy, please visit our website HERE.