Jun 16 2019
Sleep’s Choice: Living with Narcolepsy’s Excessive Daytime Sleepiness
h in Voices of Narcolepsy
By Julie Flygare
Every day, at least once, but usually twice, my head gets heavy, as if a weight sits on my skull, and I know, right then, that sleep is coming. If I don’t put my head down immediately, the heaviness only gets heavier. My joints begin to ache and a wave of nausea comes over me. And if I still don’t sleep, the back of my eyes begin to burn and I start losing contact with myself – where I am and what I’m doing. Eventually, this leads to sleep – not because I’ve reached a safe and appropriate resting spot, but because I had no choice. Sleep chose me.