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Sleep’s Choice: Living with Narcolepsy’s Excessive Daytime Sleepiness

By Julie Flygare

 

Every day, at least once, but usually twice, my head gets heavy, as if a weight sits on my skull, and I know, right then, that sleep is coming. If I don’t put my head down immediately, the heaviness only gets heavier. My joints begin to ache and a wave of nausea comes over me. And if I still don’t sleep, the back of my eyes begin to burn and I start losing contact with myself – where I am and what I’m doing. Eventually, this leads to sleep – not because I’ve reached a safe and appropriate resting spot, but because I had no choice. Sleep chose me.

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