Jan 25 2023
CATNAP® Pediatric Narcolepsy Registry
h in Research Study
Children and adolescents with pediatric narcolepsy and their caregivers can now take part in a patient registry to help researchers and clinicians better understand the condition. The Children, Adolescents, and their providers: the Narcolepsy Assessment Partnership (CATNAP®) pediatric narcolepsy disease registry collects important health and quality of life information to:
- Better understand pediatric narcolepsy, including the initial diagnosis and natural disease course
- Study ways to improve treatments and outcomes for patients
- Learn more about the impact of narcolepsy on patients and their caregivers
By increasing our knowledge of this life-altering condition, we hope to add valuable scientific insights to the field of pediatric narcolepsy. Information will be collected through a patient and a clinician portal.
Who can join?
Children and adolescents (under age 18) who have been diagnosed with narcolepsy by a doctor.
Why join a registry?
Taking part in a narcolepsy patient registry will help educate patients and caregivers, inform clinical decision-making, and potentially contribute to the development of new treatment strategies with a better understanding of patient and caregiver impacts.
How can I learn more?
To learn more about participating in this registry, visit the CATNAP® Website