Impact of Idiopathic Hypersomnia on Social Functioning Survey

A message from Dr. Thomas Scammel:

We are conducting a survey study of young adults with Idiopathic Hypersomnia (IH) to assess the impact of IH on social functioning including friendships and romantic relationships. Our study team consists of hypersomnia researchers at Beth Israel Deaconess Medical Center, including Dr. Eric Zhou and Dr. Thomas Scammell. We hope to gain a better understanding of the social lives of young adults with IH.

This study is open to young adults (age 18-39) with IH who live in the United States. Your participation is completely anonymous and optional. Wake Up Narcolepsy will not have access to your data, and you can end your participation at any time. The survey should take no more than 15-20 minutes to complete.

To thank you for your time, we will make a $25 donation to your choice of the following patient support and advocacy organizations after you complete the survey:

  • Wake Up Narcolepsy
  • Narcolepsy Network
  • Hypersomnia Foundation
  • Project Sleep

Link to the survey: https://redcap.bidmc.harvard.edu/redcap/surveys/?s=NDL9PK97FT

We thank you for your time and consideration. If you have any questions before or at any time during the study, please feel free to contact Dr. Ryan Davidson (Ryan.Davidson@childrens.harvard.edu) or Dr. Eric Zhou (ERIC_ZHOU@dfci.harvard.edu).



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