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X-WR-CALNAME:Wake Up Narcolepsy
X-ORIGINAL-URL:https://www.wakeupnarcolepsy.org
X-WR-CALDESC:Events for Wake Up Narcolepsy
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DTSTART;VALUE=DATE:20250426
DTEND;VALUE=DATE:20250427
DTSTAMP:20260420T122533
CREATED:20240501T183031Z
LAST-MODIFIED:20251204T145607Z
UID:10002198-1745625600-1745711999@www.wakeupnarcolepsy.org
SUMMARY:Wake Up Narcolepsy 2025 National Summit
DESCRIPTION:Read Event Recap \nSession recordings available now \n \nThis no-cost\, one-day hybrid summit is for people with Narcolepsy (or Idiopathic Hypersomnia)\, their families\, educators\, clinicians\, researchers and those just looking to learn more. Leading experts\, such as Dr. Aatif M. Husain\, Dr. Luis Ortiz & Dr. Shelby Harris\, and community members will share about the latest research and treatment options\, impact of Narcolepsy\, managing mental health\, advocating for yourself and how to live a full life with Narcolepsy.  \nThis is a unique opportunity to make connections with others living with Narcolepsy\, mingle with sleep professionals and get to know WUN better. The summit format offers an interesting mix of individual speakers\, panels and support groups.  \nOn Saturday\, coffee\, continental breakfast\, lunch\, snacks and parking are all included for no cost. If you are planning on staying on property\, please book your room at the Hilton using our group rate! \nWe hope to see you there! In the meantime\, check out the recordings and recap of our 2024 summit. \n\nThank you to our 2025 National Summit Sponsors! \nDiamond Champion Sponsors: \n \nGold Champion Sponsors: \n \nSilver Champion Sponsors: \n \nWelcome Event & Keynote Sponsors: \nExhibiting Sponsors: \n \n\nSchedule:\nAll times are in Eastern Time (ET) \n9:00 – 10:00 AM – (Keynote) Understanding Narcolepsy: Myths\, Facts & Latest Research \nAatif M. Husain\, MD \n10:00 – 10:45 AM – The Importance of Sleep Hygiene: Best Practices for Narcolepsy Care \nShelby Harris\, PsyD\, DBSM \n11:00 – 11:45 AM – Excessive Daytime Sleepiness: Clinical Insights & Personal Strategies  \nLuis Ortiz\, MD \n12:45 – 2:00 PM – PWN Perspectives Panel \nMonique Myers\, Rorey Smith & Phebe Ciemny \nModerated by Nicole Jeray \n2:00 – 3:15 PM – Ask the Experts \nModerated by Nicole Jeray \n3:30 – 5:00 PM – Support Groups \nPeople with Narcolepsy (PWNs) \nLoved Ones \nTeens
URL:https://www.wakeupnarcolepsy.org/event/2025-national-summit/
LOCATION:Hilton Durham near Duke University\, 3800 Hillsborough Rd\, Durham\, NC\, 27705\, United States
CATEGORIES:WUN Annual Events
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DTSTART;TZID=America/New_York:20250426T133000
DTEND;TZID=America/New_York:20250426T143000
DTSTAMP:20260420T122533
CREATED:20231122T195519Z
LAST-MODIFIED:20240905T115118Z
UID:10001136-1745674200-1745677800@www.wakeupnarcolepsy.org
SUMMARY:Living with Narcolepsy: Saturday Support Group
DESCRIPTION:The living with Narcolepsy group is an open drop-in for adults affected by Narcolepsy. The group offers weekly support based on participant needs as they arise while navigating life with Narcolepsy. Led by people directly affected by the condition\, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWN\, care-givers\, parents and spouses are also warmly invited to participate within the peer to peer platform. \nWake Up Narcolepsy offers 9 weekly online free support groups through Heypeers. More information and the full schedule can be found here.
URL:https://www.wakeupnarcolepsy.org/event/support-group-saturdays/2025-04-26/
LOCATION:HeyPeers Website
CATEGORIES:Support Groups
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