Part of Wake Up Narcolepsy’s mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. Below are resources to help you in your daily living during our time of shelter in place.

Clinically Tired Masks Fundraiser

#clinicallytired is now available as a cotton mask! When we launched our apparel as a way to fundraise for WUN’s programs we had no idea masks would be in our future. Here is a creative way to spread narcolepsy awareness, while keeping yourself and others safe.
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These masks are sold a fundraiser, and the fundraiser last 15 days. All masks will not be shipped until AFTER the fundraiser closes. Once the fundraiser campaigns are closed the items will be shipped to you! Orders will start shipping on June 15th.

Doing Life During COVID-19 Video Series

Doing Life During COVID-19 Resource List

Food

Beth Manos Brikey – Making Meals Easy

A Simple How-to Guide for Cooking, Prepping + Making the Most Out of Your Food + Skills

 

Pinch of Yum

A website that shares fresh, flavorful, (mostly) healthy recipes. Check out their 25 pantry recipes (that you’ll actually love) for some meal planning ideas.

 

Tasty

Creator of those fun overhead recipe videos that you see on Buzzfeed. Check out their meal prep ideas and other easy recipes.

 

BBC Food

Our resident Brit (aka Claire Crisp) recommends BBC Food for recipe ideas. They even have a section called Budget Recipes.

 

Kate Jay, FNTP, RWP, CGP – Healing Family Eats

An Instagram account with recipe ideas.

 

Sarah Ballantyne, PhD – The Paelo Mom

An Instagram account with recipe ideas.

 

Wellness Mama – Simple Batch Cooking Meal Plan

A helpful meal plan with shopping list.

 

Quarantine Meals!!! In Quarantine? Show us your meals!

Facebook group sharing what they are eating during the shelter-in-place protocol.

Mental Health + Support

Wake Up Narcolepsy Online Support Groups

WUN offers free, targeted online support groups to individuals with narcolepsy and their families, world-wide. Our programs are designed to bring together individuals who have been affected by the diagnosis of narcolepsy and provide the support and community necessary to thrive.

 

Narcolepsy 360 Podcast

Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder.

The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, care-giver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From latest research to life-style tips, our podcasts shed light on the less discussed issues around narcolepsy.

Join Claire Crisp, our Executive Director, as she chats every week with people within our community.

 

NAMI COVID-19 Resource and Information Guide

The National Alliance on Mental Illness (NAMI) is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. NAMI has over 600 state organizations and affiliates across the nation. Click here to access the resource guide.

 

Project Sleep’s Live! Story Sharing Series

Starting in January 2020, Project Sleep produces a monthly Rising Voices of Narcolepsy Story Sharing Series featuring trained speakers and writers presenting their stories. In the wake of COVID-19, we are offering the series weekly for the next several months to increase connection and community during this challenging time. To watch live, join us on our Facebook page on Sunday evenings at 8pm ET. Watch the recorded videos here.

 

Balance App

Meditation that adapts to you. A highly rated meditation app FREE for a year.

 

Insight Timer

#1 free app for sleep, anxiety and stress.

 

Buddify

The central idea in buddhify is that you don’t have to find time for meditation, instead it comes to you. That is why all our meditations are categorised by what you’re doing or how you’re feeling. So you’ll find guided meditations for Walking, Stress & Difficult Emotion, Work Break, Going to Sleep, Waking Up and many other different categories. Written and voiced by our range of hand-picked teachers, the sessions last from 4 minutes all the way through to 30 minutes.

 

Notes From Your Therapist Instagram

Emotions therapist + writer thinking out loud about life + stuff like that ❤️.

 

Vienna Pharaon @Mindfulmft Instagram

Vienna Pharaon is a Licensed Marriage & Family Therapist in NYC.

 

Sarah Crosby @TheMindGeek Instagram

Psychotherapist | Mental Note Maker

Homeschool

Khan Academy

PK-8th grade educational resources.

 

Starfall

Interactive reading and language resources for young children.

 

Edheads

Virtual surgery for the budding medic!

 

FUNBRAIN

Educational games

 

Homeschool Fun Worksheets

Take the work and expense out of doing school at home with our vast collection of free worksheets for kids! We not only have free worksheets, but we also have hands-on activites, printable games, and more to make learning FUN! You will find resources for all ages from toddler, pre k, kindergarten, 1st grade, 2nd grade, 3rd grdae, 4th grdae, 5th grade, 6th grade, junior high, and more! We have the BEST collection of school worksheets.

 

National Geographic for Kids

Interactive experience of National Geographic.

 

Arcademics

Boost student engagement & fact fluency with our free multiplayer educational games, math games, language arts games, and more!

 

Highlights Kids

Highlight’s online experience for kids.

 

National Gallery of Art App

The NGAkids Art Zone app contains eight interactive activities inspired by works in the collection of the National Gallery of Art, plus a sketchbook for freehand drawing and a personal exhibition space where users can save and display art created with the program. The child-friendly interface, easy-to-use tools, and the overarching emphasis on discovery, careful looking, and artistic self-expression make the NGAkids app educational and fun for the whole family.

 

Amazing Educational Resources

Education Companies Offering Free Subscriptions due to School Closings.

 

 

The Kitchen Table Classroom

Free online art classes for kids!

 

Disney

Disney is offering Free Imagineering in a Box classes.

 

ABCya

Educational online games.

 

GoNoodle®

GoNoodle® engages 14 million kids every month with movement and mindfulness videos created by child development experts. Available for free at school, home, and everywhere kids are!

Beast Academy (Math)

A full curriculum that helps young students master fundamental math concepts with interactive practice and challenges, as well as detailed progress reporting.

 

E-Learning for Kids

Free and fun digital education for all children worldwide.

 

Science Kids

Science Kids is the online home of science & technology for children around the world.

Learn more with our fun science experiments, cool facts, free games, activities, lesson plans, quizzes, videos, photos and science fair project ideas.

Coolmath4Kids

Math + Games for Kids, Teachers & Parents.

 

Starfall

At Starfall, children have fun while they learn.

Starfall.com® opened in September 2002 as a free public service to teach children to read. Since then it has expanded to include language arts and mathematics for preschool, kindergarten, first grade, second grade, and third grade. Starfall’s emphasis on phonemic awareness, systematic sequential phonics, and common sight words in conjunction with audiovisual interactivity has proven effective in teaching emergent readers. Starfall activities are research-based and align with Individual and Common Core State Standards in English language arts and mathematics.

 

Math Game Time

Math Game Time is your destination for the best math games and homework help online. Our games are fun and educational, as well as approved by parents and teachers!

 

Turtle Diary

Fun Educational and Online Games for Kids

Play, learn, practice, repeat. Introduce kids to new, exciting ways of learning with the help of fun online games, videos, experiments, puzzles, coloring sheets, and more! TurtleDiary activities pair with the appropriate grade level to enhance retention of material and increase success in the classroom.

 

SplashLearn

 

BrainPOP

BrainPOP is here to help you and your curious learners stay informed and on-track with free access during school closures.

 

Unite for Literacy

At Unite for Literacy, we picture a world where all children have access to an abundance of books that celebrate their languages and cultures and cultivate a lifelong love of reading.

 

Outschool

Live Online Classes for Ages 3-18

Explore fun, social, and safe learning experiences—taught over live video chat. 10,000+ classes led by qualified teachers. Learn from home for as low as $5/class.

 

Discovery Learning

Visit our dedicated Virtual Learning page to find ready-to-use strategies and engaging resources for educators and parents, and browse sessions from VirtCon, our recent 2-day professional learning event. Discover practical, creative, and effective ways to maximize digital resources in a virtual setting and design differentiated virtual learning experiences for students.

 

Literactive

Literactive is the leading provider of reading material for pre-school, kindergarten and grade 1 students available online.

 

Excel Easy

#1 Excel tutorial on the net!

Work from Home

7 Simple Ways I Stay Focused When Working From Home

Working from home can be a challenge here are some tips.

 

When Your Home Becomes Your Office — And Daycare

Advice from a single mom who works from home.

 

8 Tips To Make Working From Home Work For You

Never before have workers telecommuted on such a broad scale. Millions of people are trying to work from home — if they can, of course. Life Kit wants to help WFH work for you, especially if you’re doing so for the first time.

 

How to lead a team who is suddenly working from home

The professional impact of keeping a healthy distance (plus tips for remote team meetings via video).

As Coronavirus continues to spread globally, millions are joining an impromptu remote workforce overnight. It’s more important than ever to know how to communicate effectively when working from home.

Exercise

Belle Hutt

Belle Hutt, a fitness trainer and PWN, is posting at home exercise routines, on her Instagram.

 

Dance Church

Dance Church they are streaming their dance/movement classes on sundays and wednesdays. This dance work out class designed for all levels of bodies and dancing abilities.

 

Ryan Heffington – Sweatfest

He is the owner of a beloved dance studio in Los Angeles called the sweat spot. He is currently streaming live his movement class called “Sweat Fest” multiple times a week on Instagram Live.

 

Obe Fitness

Unlimited access to daily live and 4,000+ on-demand classes for less than the cost of one studio fitness class.

 

7M Fitness

7 minutes workout apps.

 

The Echelon Fit App

The Echelon Fit App provides live and on-demand studio fitness in the comfort and convenience of your own home.  One membership works for all machines, including the Connect Bikes, Reflect mirrors and future machines!

 

Quaran Train

A group of student physiotherapists at HAN University Of Applied Sciences, Netherlands, decided to set up “QuaranTrain”. An initiative to improve physical and mental health during these challenging times with the COVID-19 pandemic.

 

YMCA 360 ON-DEMAND CLASSES

Bring the Y to you, wherever you are.

Whether it’s a current Y favorite or something new to you, YMCA 360 matches your lifestyle with a growing library of online videos for you and your family.

 

Centr

Work out at home, stay healthy & seek calm together with Chris Hemsworth’s team.

 

Orange Theory

At home workouts with Orange Theory.

 

Cosmic Kids Yoga

Yoga, mindfulness and relaxation designed specially for kids aged 3+, used in schools and homes all over the world.

Play - Adults

Scribd

Unlimited books, audiobooks, magazines, and documents. The “Netflix” for books. Free for 30 days $8.99/mo after.

 

5 Coloring Sheets by Morgan Harper Nichols

“Coloring is one of those childhood things that often get put on the sidelines as we grow up. I hope these pieces encourage you to keep creating. Keep finding ways to add color. Feel free to paint over these in an app like ProCreate or print them out. If you end up sharing the hashtag #beautifulhonestthings. I’d love to see! – Morgan”

 

Virtual Vacations by VRBO

5 virtual vacations – The Louvre in Paris, San Diego Zoo, Walk the Great Wall of China, watch surfing in Maui, and travel to Mars from aboard NASA’s Curiosity Rover.

 

Makers Kit

Makers Mess curates and delivers the perfect creative experience for you.

 

Victory Gardens

During World War I and World War II, many countries encouraged their citizens to grow gardens, often called “Victory Gardens.” This relieved some of the burden on the public food supply and was marketed as a way to help the war efforts. In fact, some sources report that 41% of the food Americans consumed during these times was grown in these home gardens.

 

12 Virtual Museums Tours

Google Arts & Culture teamed up with over 2500 museums and galleries around the world to bring anyone and everyone virtual tours and online exhibits of some of the most famous museums around the world.

 

Creativebug

You’re more creative than you think. Experience the joy of making thousands of award-winning video classes taught by top designers and artists.

Play - Children

Raddish

Offering free cooking ideas – “We believe the heart of the home is the kitchen. And our team of parents, chefs, and educators know the kitchen classroom is the tastiest place to learn — not just cooking, but math, science, geography, and history, too! We’ve created this page as a free resource to support families like yours, because food is love: it comforts and connects us all!”

 

 

Kids Steam Lab

31 Days of Drawing Ideas for Kids to help inspire creative thinking!

Creativity is a skill that can be developed. Like any muscle, the brain needs to be exercised and challenged. Join us as we create 31 days of drawing ideas to help inspire the imagination.

 

LUNCH DOODLES with Mo Willems!

Mo Willems invites YOU into his studio every day for his LUNCH DOODLE. Learners worldwide can draw, doodle and explore new ways of writing by visiting Mo’s studio virtually once a day for the next few weeks. Grab some paper and pencils, pens, or crayons and join Mo to explore ways of writing and making together. If you post your art to social media, be sure to hashtag it with #MoLunchDoodles!

 

Romero BRITTO – Free Coloring Book/ IG Live Painting Classes

Romero BRITTO is offering a free printable coloring book.

 

10 Authors And Illustrators Who Are Keeping Kids Busy

Authors facilitating read along or illustration lessons.

 

Jessica Reed Kraus @houseinhabit Instagram

An Instagram account of a mother with 4 boys. She currently is sharing craft ideas using simple materials like cardboard boxes. Also check out her highlights for recommended family movies.

 

Stories for kids/teens at Audible

For as long as schools are closed, we’re open. Starting today, kids everywhere can instantly stream an incredible collection of stories, including titles across six different languages, that will help them continue dreaming, learning, and just being kids.

 

Dav Pilkey, Author and Illustrtor of Captain Underpants and Dog Man

Dav Pilkey At Home. Together we can get creative and have fun with some of your favorite characters from Dog Man and Captain Underpants! Check back every Friday to discover new activities, exciting videos, and so much more!

 

The Hippo-Critic: A Tale of Epic Proportions Coloring Book

Authored by a PWN, Andre Royale – You are what you eat aren’t you? Meet a Chef who becomes a food critic. He just happens to be a hippo. Come along on a taste adventure with “The Hippo Critic”. Find out what’s next on the menu & try something new!

 

Center for Courageous Kids Virtual Camp

Follow along april 6-10th on Facebook or Instagram.

 

All Kids Network

Craft directions and activities.

 

Yellowstone National Park

Yellowstone National Park’s virtual tours.

 

San Diego Zoo

An interactive zoo experience.

 

Switch Zoo

Switch Zoo has 142 species, and the website features additional animal games, music created from animal voices, a reference section about all the animals in Switch Zoo, lesson plans, and poetry, stories and artwork created by students and other visitors.

 

PBS Kids

PBS Kids online games.

 

Tynker

Coding Made Easy. Everything needed to learn computer programming the fun way! Ages 5+

 

Seussville

The Lorax crafts and activities.

Business and Financial Support

Dear Non-Profits, Small Businesses, Artists, Freelancers, Gig Workers, Self-Employers, Part-Timers, and Solo Shop Warriors Wondering What’s Next: This Money is For You. Please Take It.

A breakdown of the CARES Act and how it might help save your business.

 

What is the Paycheck Protection Program? (A Simple Guide)

On March 27, 2020 the U.S. federal government signed the CARES Act into law—a big coronavirus relief bill aimed at supporting small businesses through this difficult time.

One of the measures in the bill is the Paycheck Protection Program—here’s everything you need to know.

 

Covid-19 Freelance Artists Resources

This list is specifically designed to serve freelance artists, and those interested in supporting the independent artist community. This includes, but is not limited to, actors, designers, producers, technicians, stage managers, musicians, composers, choreographers, visual artists, filmmakers, craft artists, teaching artists, dancers, writers & playwrights, photographers, etc.

 

Student Loan Advice for Freelancers

Most freelancers I know have student loans. I happen to be a freelancer with a LOT of student loans.

Right now, for obvious reasons, a lot of freelancers are extra concerned about their business, and in turn, their cash flow. Maybe you are a freelancer who just lost a ton of gigs or clients, or maybe you are simply caught in an anxiety spiral, bracing yourself for the unknown.

If you have United States Department of Education Student Loans, this article is for you.

 

The Legal Paige

Teaching small business owners the legal way to run their business without breaking out in hives. Free resources created with your business in mind…

General Health

Medicine In The Age Of COVID-19 And Beyond

It’s natural to have a lot of questions right now. COVID-19 has quickly changed the way we think about health and go about our daily lives.

And though we still have a lot to learn about the novel coronavirus, there are also a lot of ways we can keep ourselves, our families, and our communities strong and healthy.

 

A Pediatrician’s Pandemic Immune Support Plan

Many of you have asked me how to support your family’s immune systems during the Coronavirus pandemic. And many of you want to know specifically what I’ve been doing as a holistic pediatrician and mama, for my very own family, so I’m going to share it all!

 

My Common-Sense Guide to Viruses and Pandemics (for Moms)

Wellness Mama’s tips from experts and what her family is doing to stay healthy and for social distancing scenarios or shortages of supplies.

Sleep

AASM COVID-19 Resources

The AASM is committed to equipping sleep medicine professionals, accredited sleep facilities, and other health care providers with resources and information to promote health and safety during the novel coronavirus (COVID-19) pandemic.

 

ATS Pediatric Sleep Medicine & COVID-19

Breathe Easy Podcast discusses how the recent COVID-19 pandemic is impacting pediatric sleep medicine. Their guest panel from across the country shares results of a recent survey of pediatric sleep provides, how their sleep labs are currently adapting to changing circumstances, solutions for moving clinic visits to telehealth, trainee issues, and PAP concerns.

Meds and Pharmaceutical Co. Support

Harmony Biosciences’

Consistent with Harmony Biosciences’ core value of putting the patient at the heart of all we do, there is no higher priority than supporting the community. During this critical time with the spread of COVID-19, we are working diligently to ensure the continuity of Harmony’s business operations in support of patients. Specifically, we are working closely with WAKIX for You, our

Specialty Pharmacies, and all partners to ensure uninterrupted prescription processing and access to information about WAKIX® (pitolisant) tablets.

As always, we are here to support you, healthcare professionals, and the community.

Please refer to the following important contact information:

Website

Our website, www.wakix.com, contains educational information about our product for patients and their support network.

WAKIX for You Patient Services

For any questions on the status of your WAKIX prescription, please call your Patient Case Manager at 1-855-WAKIX4U (1-855-925-4948). Patient Case Managers are available to assist you Monday–Friday between the hours of 8AM to 8PM ET.

We will continue to work with our partners and the community and will communicate any updates in a timely manner.

 

Jazz Pharmaceuticals

Jazz Pharmaceuticals has reached out to share they are available for any PWNs who have concerns during this time of the COVID-19 pandemic. Here are three different ways you can get in contact with them.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Patients may reach out directly to Jazz’s Patient Support Services, through www.jazzcares.com. Patients and HCPs may also call M-F 8 am – 8 pm ET at 1-883-533-JAZZ (5299). For medicine-specific questions, they can go to the individual sites listed on www.jazzpharma.com/medicines for specific information.⠀

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