Narcolepsy Meetup Atlanta 12/1-12/2 2017

Posted by on Dec 8, 2017 in Awareness, Events, Research, Wake Up Narcolepsy

Sponsored by Global Genes represented by Amy Grover-Sr Manager of Patient Engagement and Kendall Davis- Director Strategic Alliances Julea Steiner and Tammy Smith, Board of Directors Members, attended the event representing WUN.  There were approximately 50 PWN and supporters at this event.  The event consisted of a Meet and Greet dinner on Friday night.  Saturday’s […]

No Rest for the UnWicked

Posted by on Dec 8, 2017 in Awareness, Wake Up Narcolepsy

I have a theory that the plot of Sleeping Beauty was based, in large part, on my son Dylan.  I don’t mean to suggest my son grew up with fairies or sorcery, obviously those were added for fairy tale flair, but he did fall into a deep slumber for the better part of two years […]

Noah’s Journey

Posted by on Nov 20, 2017 in Awareness

It has been over two and a half years since the Diagnosis. In April of 2015, I had to explain to my then seven-year-old daughter, Ella, why we would not be throwing her a big birthday party with all of her friends as she was turning eight. To be honest, the previous 5 months had […]

Wake Up Narcolepsy Awards $35,000 Grant To Dr. Scammell At Harvard For Further Research Into Narcolepsy

Co-founder Monica Gow presented a check last week to the department of sleep medicine at Harvard Medical School. During a visit to the Lab, Dr. Scammell shared progress being made into the mechanisms of cataplexy, a disabling symptom of narcolepsy. In a statement detailing the discoveries made in narcoleptic mice, he shared with Monica the […]

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