Our first Wunner Amanda Burns is already in training for the Boston Marathon. Here is why she is running and how you can support her.
Allyssa, my daughter, was diagnosed with Narcolepsy with Cataplexy in 2012 at the age of 12. Allyssa has grown up faster, and been exposed to more than a kid should have to be. Narcolepsy and the suppressed emotional state it has developed has been hard. Not hearing Allyssa laugh for fear of falling and being embarrassed in public was hard in the beginning. Endless hours of counseling to control the anger, depression, and anxiety that came along with Narcolepsy was consuming. Looking at pictures of the care free girl who laughed and played and enjoyed life before narcolepsy is heartbreaking. Allyssa and our family have grown to embrace life with Narcolepsy, and not let it take control of who she is, by gaining education, attending support groups, and educating those we meet. Running the Boston Marathon for me is about raising a voice for Narcolepsy. Allyssa will be graduating from High School this year, I feel the best gift I can give her is showing her how to raise a voice and how to help shape the future of Narcolepsy research. This race for me means shouting from the highest mountain, I have a daughter with Narcolepsy, and I will not let it defeat who she is, what she can do, or where she will go in life!