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Join our Hybrid event scheduled for Sept 24th from 8:30am-4:30pm. The in person session will be held at the Westin Waltham-Boston and people will be able to attend virtually. Both events are FREE, and the in person event we will also include breakfast, lunch and parking at no cost.

We hope you will join us and hear from expert scientists and other experts living with narcolepsy. It is a great day to mingle with researchers and others who have narcolepsy.

TOPICS / SPEAKERS

Narcolepsy Overview & Research Update: Thomas Scammell, MD, Neurologist and Sleep Medicine Physician, Beth Israel Deaconess Medical Center, Professor of Neurology, Harvard Medical School

Taking Care of Your Mental Health for People with Narcolepsy: Eric Zhou, PhD, Psychologist at Boston Children’s Hospital and Dana Faber Cancer Institute, Assistant Professor of Pediatrics, Sleep Medicine, Harvard Medical School

Looking Into the Future: Emerging Trends in Clinical Trials for Narcolepsy: Gary Zammit, PhD, FAASM, President & CEO, Clinilabs Drug Development Corporation, Clinical Professor of Psychiatry, Icahn School of Medicine at Mount Sinai

Transition from Pediatric to Adult with Narcolepsy: Kiran Maski, MD, MPH, Neurologist and Sleep Medicine Physician, Boston Children’s Hospital, and Assistant Professor of Neurology, Harvard Medical School

Living with Narcolepsy (Journey, Tips and Tricks): Charlie Bain, Senior Account Executive, PWN and Ashley Starr Frechette, MPH, Director of Health Professional Outreach at the Connecticut Coalition Against Domestic Violence, PWN

Narcolepsy Therapies 101: Margaret Blattner, MD, PhD, Neurologist at Beth Israel Deaconess Medical Center, Clinical Instructor, Harvard Medical School

Teen Breakout Session: Led by Stephanie Manuli

Parent Breakout Session: Led by Anne Samarawickrama

Person with Narcolepsy Breakout Session: Led by Liz Guckian

VENUE

The conference will be held at the Westin Waltham-Boston located at 70 3rd Ave, Waltham, MA 02451.

COVID-19 (date: June 13, 2022)

Wake Up Narcolepsy recognizes that the distribution of COVID-19 infections is highly variable, with cases currently rising in some geographical regions. The situation is rapidly changing.Creating a safe environment for Northeast Narcolepsy Conference participants is of utmost importance to Wake Up Narcolepsy. As the meeting approaches, we will continually review the latest guidelines for COVID-19 risk mitigation and will follow all federal, state, local and facility requirements related to COVID-19, which may change at any time.

Coronavirus information for Massachusetts is available here: https://www.mass.gov/covid-19-updates-and-information.

RESERVE YOUR ROOM

The Westin has given our attendees a special room rate of $119 for September 23 and 24. To get this exclusive rate, please visit https://book.passkey.com/e/50313195.

SPONSORS

Thank you to our sponsors, Avadel Pharmaceuticals, Harmony Biosciences, Jazz Pharmaceuticals, Orexia Therapeutics and Takeda Pharmaceuticals, for making this event possible.

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