Every advance in the understanding of narcolepsy is based on research. Wake Up Narcolepsy, Inc. (WUN) is committed to advancing research and encourages people with narcolepsy and their families to learn about opportunities to participate in research studies and clinical trials.
Boston Children’s Hospital
- Children with narcolepsy are wanted for research study on obesity. Help us study why children with narcolepsy often become overweight. Research doctors at Boston Children’s Hospital seek children with narcolepsy (4-18 years old). This study involves 1 visit at Boston Children’s Hospital (4-5 hours). The study will take 1 week to complete. Participants will receive up to a $100 gift card and parking vouchers. Call Dr. Shaw (study PI) at 617-726-1895 for more information.
Stanford Center for Narcolepsy
- Currently conducting a clinical research trial for ages 18-55 years diagnosed with Narcolepsy-Cataplexy. Qualified participants will be compensated for time and travel. Please call 650-721-7551 or email firstname.lastname@example.org to see if you qualify.
- Currently recruiting African Americans with narcolepsy for Blood Study. Patients may or may not have cataplexy. Participants will be asked to complete a questionnaire, provide copies of their sleep-related medical records and arrange locally for a blood sample to be sent to the Center for Narcolepsy via prepaid FedEx for HLA typing. Please call for more information: 650-721-7550
- SDS Clinical Trials, Inc. is conducting a clinical research trial for ages 18-55 years diagnosed with narcolepsy-cataplexy. Qualified participants will be compensated for time and travel. Please call 714-834-1565 or email email@example.com to see if you qualify. www.sdsclinicaltrials.com
South Pasadena, FL
- Clinical Research Group of St. Petersburg is conducting a clinical research trial for ages 18-55 years diagnosed with narcolepsy-cataplexy. Qualified participants will be compensated for time and travel. Please call 727-360-0853 or email firstname.lastname@example.org to see if you qualify. www.sleepwatcher.net
- Todd J. Swick, MD, PA, is conducting a clinical research trial for ages 18-55 years diagnosed with arcolepsy-cataplexy. Qualified participants will be compensated for time and travel. Please call 713-465-7066 or email email@example.com to see if you qualify. www.sleepandneurology.com
ClinicalTrials.org is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. Visit: www.clinicaltrials.org and search “narcolepsy.”
Brain Donation Programs. To better understand the cause, course, and treatment of narcolepsy, leading narcolepsy research institutions have established brain donation programs. Donated brains provide an invaluable resource to the future of the narcolepsy community.
Harvard Medical School’s Brain Donation Program: Dr. Thomas Scammell’s lab is currently accepting brain donations and especially in need of brains from people with narcolepsy over age 70 or with life expectancy less than 5 years. The program is especially in need of brains from people with well-documented narcolepsy without cataplexy, as much less is understood about this disorder. For more information, contact Dr. Thomas Scammell at firstname.lastname@example.org.
Additional Research Resources. For more information about clinical trials related to narcolepsy, talk with your doctor. You also can visit the following Web sites to learn more about research opportunities:
- National Institutes of Health, clinicalresearch.nih.gov
- U.S. National Institutes of Health, www.clinicaltrials.gov
- National Heart, Lung and Blood Institute, www.nhlbi.nih.gov/studies/index.htm
- ResearchMatch, www.researchmatch.org
- Havard Medical School Sleep Research Recruitment, sleep.med.harvard.edu/research/recruitment
- Aerial BioPharma, LLC, clinicaltrials.gov/ct2/show/NCT01681121
- NeuroTrials Research, Inc., www.neurotrials.com
For more information about clinical trials for children, visit the NHLBI’s Children and Clinical Studies website.