Clinical Trial Opportunities

Every advance in the understanding of Narcolepsy is based on research. Wake Up Narcolepsy is committed to advancing research and encourages people with Narcolepsy and their families to learn about opportunities to participate in research studies and clinical trials.

Boston Children’s Hospital

Children with Narcolepsy are wanted for research study on obesity. Help us study why children with Narcolepsy often become overweight. Research doctors at Boston Children’s Hospital seek children with Narcolepsy 4-18 years old. This study involves one visit at Boston Children’s Hospital for a duration of 4-5 hours. The study will take approximately one week to complete. Participants will receive up to a $100 gift card and parking vouchers.

Call Dr. Shaw (study PI) at 617-726-1895 for more information.

Jazz Pharmaceuticals

1) Stanford is currently conducting a clinical research trial for ages 18-75 years diagnosed with Narcolepsy. Qualified participants will be compensated for time and travel. Please call 650-721-5489 or email sabam@stanford.edu to see if you qualify.

2) TONES Study – If you are experiencing excessive sleepiness due to narcolepsy, you may be interested in learning more about the TONES medical research study of an investigational product for excessive sleepiness.

In the TONES study, doctors are evaluating the effectiveness of the investigational product to treat sleepiness and to help you stay awake when it is taken once a day for 12 weeks.

To pre-qualify for the TONES study, you must be:

  • Between 18 and 75 years of age
  • Diagnosed with narcolepsy
  • Sleeping at least 6 hours a night

All study-related visits, tests, and investigational product will be provided to you at no cost. In addition, reimbursement for study-related time and travel may be provided.

To learn more, please visit www.tonesstudy.com.

Orange, CA

SDS Clinical Trials, Inc. is conducting a clinical research trial for ages 18-55 years diagnosed with Narcolepsy-Cataplexy. Qualified participants will be compensated for time and travel.

Please call 714-834-1565 or email info@sdsclinicaltrials.com to see if you qualify

South Pasadena, FL

Clinical Research Group of St. Petersburg Sleep Disorder Center is conducting a clinical research trial for ages 18-55 years diagnosed with Narcolepsy-Cataplexy. Qualified participants will be compensated for time and travel.

Please call 727-360-0853 or email mobrien@crgstpete.com to see if you qualify

Houston, TX

Todd J. Swick, MD, PA, of the Houston Sleep and Neurology Associates is conducting a clinical research trial for ages 18-55 years diagnosed with Arcolepsy-Cataplexy. Qualified participants will be compensated for time and travel.

Please call 713-465-7066 or email research@houstonsleepcenter.com to see if you qualify

Brain Donation Programs

Stanford Medical School

To better understand the cause, course, and treatment of Narcolepsy, leading Narcolepsy research institutions have established brain donation programs. Donated brains provide an invaluable resource to the future of the Narcolepsy community.

Click here for the Stanford Brain Donation website

Harvard Medical School

The Dr. Thomas Lab is currently accepting brain donations and is especially in need of brains from people with Narcolepsy over age 70 or with life expectancy less than 5 years. The program is especially in need of brains from people with well-documented Narcolepsy without cataplexy, as much less is understood about this disorder.

For more information, contact Dr. Thomas Scammell at tscammel@bidmc.harvard.edu

Additional Research Resources

For more information about clinical trials related to Narcolepsy, talk with your doctor. You also can visit the following sites to learn more about research opportunities: