Upcoming Events

Boston Marathon WUNners – April 17, 2017

26.2 miles, 500+ hours of training, $90,000 in fundraising.

The Wake Up Narcolepsy (WUN) team currently consists of three dedicated runners competing with the hopes of someday curing Narcolepsy and leaving this disease in the dust. This will be the eighth consecutive year the WUN team has raced to the finish line in Boston.

The 2017 WUNners are Jenna Brady, Claire Carlson and Diane Sweet, and we are waiting for confirmation from one additional runner. We are deeply grateful to our dedicated team members who work tirelessly to both train for this prestigious athletic event, and reach out to family, friends and colleagues for support. We are also grateful to our generous donors, and to the John Hancock Charity Program for their support.

Sleep Week 2017: April 23-29

Promote Narcolepsy research by sharing an alarming fact on social media. Every day, Wake Up Narcolepsy will post an alarming fact on Facebook that you can share with all of your friends to help spread awareness.

Wake Up Nashville – TBD

Host Your Own Event – Anytime!

Awareness is a grass roots effort that can spread far and wide. You’ll connect most effectively with others by sharing personal stories and gathering people together. Here are some event ideas for inspiration:

  • Give a talk about Narcolepsy at your local school or group like the Chamber of Commerce, Senior Citizens Center or youth center
  • Ask your local school principal for permission to display our Narcolepsy Goes to School brochures in the teacher’s lounge
  • Plan a sleep walk/run in your community, with a short talk about Narcolepsy before the start of the event, and a Narcolepsy information table and free Narcolepsy giveaways, which we can provide
  • Talk to your local librarian about hosting an awareness event. Most public libraries will post information about the activities of nonprofit organizations, such as NSAW and WUN.
  • Add a “Narcolepsy Fast Facts” insert, which WUN can provide.
  • Host a “courage party” to celebrate a young person with Narcolepsy.
  • Adda brief Narcolepsy awareness message to your email signature, such as “Narcolepsy Izzzzz No Joke!” or “Let’s bring Narcolepsy out of the shadows!”
  • Ask places of worship to include in their newsletters and bulletins an item announcing National Sleep Awareness Week, held annually in March.
  • Send email “blasts” to family, friends, and colleagues about NSAW and ask them to pass it on.
  • Host an event to raise awareness and money for research, such as a dance marathon, fashion show, slumber party, karaoke party…the sky’s the limit!
  • Check out our WUN Store for t-shirts, bracelets and other items to help get you started. Wake Up Narcolepsy can help you organize and promote your local awareness events. Contact us at info@wakeupNarcolepsy.org

 

Campaigns

Narcolepsy Goes To School

WUN offers free, non-commercial, lay-language Narcolepsy Goes to School (NGS) workshops for school teachers and nurses. Narcolepsy is seriously underdiagnosed and poorly understood. It is not uncommon for 8-10 years to pass before a proper diagnosis is made. Consequently, school teachers and nurses, coaches and other educators often are the first to observe students with overwhelming sleepiness and other symptoms of Narcolepsy.

 

Alarming Facts

Promote Narcolepsy research by sharing an alarming fact on social media. Every day during Sleep Week from March 6-13, 2016, Wake Up Narcolepsy will post an alarming fact on Facebook that you can share with all of your friends to help spread awareness.

 

Past Events

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