News: Wake Up Narcolepsy Continues Research Funding at Harvard University

Posted by on Dec 1, 2014 in Diagnosis, Research, Treatment

$30,000 Grant to Dr. Thomas Scammell Supports Ongoing Search for Narcolepsy Cure Worcester, MA – December 1, 2014 – Wake Up Narcolepsy, Inc. (WUN), a nonprofit organization working to speed narcolepsy diagnosis and help in the search for a cure, recently awarded a research grant for $30,000 to Dr. Thomas Scammell, Professor of Neurology at […]

Diagnose Narcolepsy Through MSLT

Posted by on Nov 25, 2014 in Diagnosis, Treatment

If you think you or a loved one might have narcolepsy, a conclusive diagnosis requires a Multiple Sleep Latency Test, or MSLT, which can be administered only by a licensed sleep physician or sleep center. This may help you prepare for the MSLT. http://www.sleepeducation.com/disease-detection/multiple-sleep-latency-test/testing-process-results Learn more at https://www.wakeupnarcolepsy.org/about-narcolepsy/could-i-have-narcolepsy/ Find a sleep specialist near you. https://www.wakeupnarcolepsy.org/physician-finder/

FDA Narcolepsy Report: Insightful and Enlightening

Posted by on Jul 1, 2014 in Treatment

If you haven’t yet read the Food & Drug Administration (FDA) “Voice of the Patient” report on narcolepsy, we urge you take the time to do so. http://www.fda.gov/downloads/ForIndustry/UserFees/PrescriptionDrugUserFee/UCM402907.pdf You may want to share this insightful report with friends, family members, physicians, teachers, colleagues, and others who may not fully appreciate the serious challenges people with […]

A Message from the U.S. Food and Drug Administration

Posted by on Jun 26, 2014 in Awareness, Treatment

We are pleased to announce the publication of the “The Voice of the Patient”  narcolepsy report that summarizes patient input from the September 24, 2013, FDA Patient-Focused Drug Development (PFDD) meeting on Narcolepsy. The report has been posted online and can be found at www.fda.gov/forindustry/userfees/prescriptiondruguserfee/ucm359018.htm. We are thankful for your participation and grateful to the patients, […]

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