Narcolepsy Meetup Atlanta 12/1-12/2 2017

Posted by on Dec 8, 2017 in Awareness, Events, Research, Wake Up Narcolepsy

Sponsored by Global Genes represented by Amy Grover-Sr Manager of Patient Engagement and Kendall Davis- Director Strategic Alliances Julea Steiner and Tammy Smith, Board of Directors Members, attended the event representing WUN.  There were approximately 50 PWN and supporters at this event.  The event consisted of a Meet and Greet dinner on Friday night.  Saturday’s […]

Amanda Burns Runs For WUN In The 2018 Boston Marathon

Our first Wunner Amanda Burns is already in training for the Boston Marathon. Here is why she is running and how you can support her. Allyssa, my daughter, was diagnosed with Narcolepsy with Cataplexy in 2012 at the age of 12. Allyssa has grown up faster, and been exposed to more than a kid should […]

Narcolepsy Community Update – Claire Crisp Joins Wake Up Narcolepsy as Executive Director

Posted by on Oct 18, 2017 in Events, Wake Up Narcolepsy

Narcolepsy Community Update – I am excited to inform you of a new addition to the Wake Up Narcolepsy (WUN) team. Effective October 1, 2017, Claire Crisp, award-winning author and advocate in the narcolepsy community, joined WUN as the Executive Director. Claire is a mother of three children, one of which is an eleven year old […]

WUN Supports Narcolepsy Family Education Day in Canada

Posted by on Sep 21, 2017 in Awareness, Events, Wake Up Narcolepsy

On September 9, 2017, The Hospital for Sick Children in Toronto, Canada in partnership with Wake Up Narcolepsy hosted a Narcolepsy Family Education Day for patients, families and anyone involved in the care of children with Narcolepsy. A highlight of the day was when WUN Co-founder and Board Member, David Gow and WUN Board Member […]

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