WUN is thrilled to award Dr. Ong a grant of $3,000 for research into the psycho-social aspects of narcolepsy

On behalf of Wake Up Narcolepsy board member Nicole Jeray who is a full-time professional golfer and a PWN awarded Dr. Ong and graduate research assistance Rylee Brower funds last week for an innovative and much needed project. The research team, based at Northwestern University, Chicago, conducted a survey that revealed most people with narcolepsy […]

WUN Mission to Support Narcolepsy Research In Action

Congratulations to WUN Co-founder and Board Member, Monica Gow, who is listed as co-author on an article and poster presented at the SLEEP 2017 Conference by Dr. Kiran Maski, MD, Sleep Neurology Clinics, Boston Children’s Hospital titled “Listening to the Patient Voice: Diagnostic Delays, Disease Burden and Treatment Efficacy.” Recently, Gow was interviewed by Sleep […]

Narcolepsy Diagnosis Leads To Strength, Perseverance And Purpose

Posted by on Oct 20, 2016 in Awareness, Diagnosis

The Voices of Narcolepsy – Meet Ashley “Going Beyond The Impossibilities” by Ashley Deneen “ASHLEY GET UP! BABY PLEASE GET OFF THE FLOOR!” Those were the first words I remember my parents frantically screaming after I unexpectedly collapsed, and hit the bathroom door while standing in the hallway of my house. That was in early […]

Narcolepsy is Topic at MGH Neurology/Neuroscience Conference

Posted by on Jun 7, 2016 in Awareness, Diagnosis, Wake Up Narcolepsy

Narcolepsy was the topic of discussion at today’s Neurology/Neuroscience Conference held at Massachusetts General Hospital. Monica Gow, executive director at Wake Up Narcolepsy, and her 19 year old son Thomas were invited to the Neurology/Neuroscience Conference at Massachusetts General Hospital & Brigham and Women’s Hospital which was held today, June 7, 2016. The conference included […]

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