WUN Mission to Support Narcolepsy Research In Action

Congratulations to WUN Co-founder and Board Member, Monica Gow, who is listed as co-author on an article and poster presented at the SLEEP 2017 Conference by Dr. Kiran Maski, MD, Sleep Neurology Clinics, Boston Children’s Hospital titled “Listening to the Patient Voice: Diagnostic Delays, Disease Burden and Treatment Efficacy.” Recently, Gow was interviewed by Sleep […]

Narcolepsy Diagnosis Leads To Strength, Perseverance And Purpose

Posted by on Oct 20, 2016 in Awareness, Diagnosis

The Voices of Narcolepsy – Meet Ashley “Going Beyond The Impossibilities” by Ashley Deneen “ASHLEY GET UP! BABY PLEASE GET OFF THE FLOOR!” Those were the first words I remember my parents frantically screaming after I unexpectedly collapsed, and hit the bathroom door while standing in the hallway of my house. That was in early […]

Narcolepsy is Topic at MGH Neurology/Neuroscience Conference

Posted by on Jun 7, 2016 in Awareness, Diagnosis, Wake Up Narcolepsy

Narcolepsy was the topic of discussion at today’s Neurology/Neuroscience Conference held at Massachusetts General Hospital. Monica Gow, executive director at Wake Up Narcolepsy, and her 19 year old son Thomas were invited to the Neurology/Neuroscience Conference at Massachusetts General Hospital & Brigham and Women’s Hospital which was held today, June 7, 2016. The conference included […]

Narcolepsy Changes One Seven Year Old Boy’s Life Forever

Posted by on May 25, 2016 in Awareness, Diagnosis

Narcolepsy Hits Ben at age seven and drastically changes his life and his family’s life forever. For the first seven years of his life, Ben was a normal, energetic, vivacious child. In 2012 all of that changed and Ben, once active and playful, began spending worrisome amounts of time sleeping and napping. Noticing his significant […]

Load More