Narcolepsy Meetup Atlanta 12/1-12/2 2017

Posted by on Dec 8, 2017 in Awareness, Events, Research, Wake Up Narcolepsy

Sponsored by Global Genes represented by Amy Grover-Sr Manager of Patient Engagement and Kendall Davis- Director Strategic Alliances Julea Steiner and Tammy Smith, Board of Directors Members, attended the event representing WUN.  There were approximately 50 PWN and supporters at this event.  The event consisted of a Meet and Greet dinner on Friday night.  Saturday’s […]

No Rest for the UnWicked

Posted by on Dec 8, 2017 in Awareness, Wake Up Narcolepsy

I have a theory that the plot of Sleeping Beauty was based, in large part, on my son Dylan.  I don’t mean to suggest my son grew up with fairies or sorcery, obviously those were added for fairy tale flair, but he did fall into a deep slumber for the better part of two years […]

Noah’s Journey

Posted by on Nov 20, 2017 in Awareness

It has been over two and a half years since the Diagnosis. In April of 2015, I had to explain to my then seven-year-old daughter, Ella, why we would not be throwing her a big birthday party with all of her friends as she was turning eight. To be honest, the previous 5 months had […]

Amanda Burns Runs For WUN In The 2018 Boston Marathon

Our first Wunner Amanda Burns is already in training for the Boston Marathon. Here is why she is running and how you can support her. Allyssa, my daughter, was diagnosed with Narcolepsy with Cataplexy in 2012 at the age of 12. Allyssa has grown up faster, and been exposed to more than a kid should […]

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